Honoring Joanna Francis and Her Living Well Foundation

Longtime friends Joanna Francis, co-founder of Living Well Foundation, and Debbie Goetz, publisher of the College Park Community Paper

Joanna Francis and Debbie Goetz (used by permission)

This weekend I read a beautiful yet heart-rending message by my friend, Debbie Goetz, publisher of the College Park Community Paper. On Sunday, June 1, her dear, dear friend Joanna Francis died after living with terminal cancer since 2008.

Please note that I said “living with,” not “dying of.”

For years, Debbie has shared her concerns for Joanna’s well-being and her admiration for Joanna’s outlook. As cancer intruded further into Joanna’s life and future, her attentions focused on her three sons’ well-being — and on the lives of other patients she met in the course of myriad doctor appointments. By her own experience, Joanna understood the difficulties in meeting the many non-medical needs of day-t0-day living with cancer. As she networked with other mothers enduring similar medical prognoses, she recognized their serious financial struggles in living with terminal cancer while raising children.

Joanna’s thoughtful awareness went beyond good wishes. She created a foundation to provide financial help for patients like the many she’d gotten to know. In 2011 she  co-founded, along with Jennifer Taylor, the Joanna Francis Living Well Foundation.

As Joanna’s friends share their experiences with this remarkable woman, their words honor her memory. As they spread the vision of her foundation, they look for its mission to bless the lives of many more women facing terminal cancers like hers. They, like Joanna, want something “good” to come from her experience. As Debbie Goetz told me, “She truly was a special person who believed it was her destiny to go through this so she could be a witness to so many.” [Quoted by permission.]

Though saddened by her passing, her friends honor Joanna’s memory in positive ways. Another friend, Bob Gabordi of the Tallahassee Democrat, wrote this uplifting tribute that concludes with a call to remember her for what she accomplished and to contribute to the dream she shared: Joanna Francis: The face of love and living.

In his article, Mr. Gabordi also mentioned Joanna’s ongoing concern for her sons. Her foundation made her a public figure as she lived with terminal cancer, but for her three sons the knowledge that their mother had terminal cancer was — and is — personal.

If you know Joanna’s family, please reach out to her sons. They will need your support and understanding in the days, weeks, months, and years ahead. (Yes, years.)

  • Listen to them. Allow them to share their feelings of mourning. As proud as they are of their mother, they miss her.
  • Write your memories of their mom to share with them throughout the year and/or in the years ahead.
  • Be sensitive as every new season and holiday approaches.
  • Acknowledge how much you miss her, too.
  • Validate their feelings. Children (and adults) need to know there is no “right” or “wrong” way (or time) for grief to manifest. Tears, anger, numbness, laughter, frustration, nostalgia–all are “normal” and healthy reactions to loss.
  • Don’t claim to know how they feel. Her absence will be harder than you can possibly imagine–unless you also lost a parent while in your youth, and even then, your relationship was yours, not theirs.

Even if you don’t know the Francis family, please keep them in your prayers. If you’re in a position to do so, please consider honoring their mother by contributing to the Joanna Francis Living Well Foundation.

How to Express Your Condolences for a Loved One–guest post by Suzie Kolber

Suzie Kobler writes for ObituariesHelp.org

Suzie Kolber is a writer at http://obituarieshelp.org/words_of_condolences_hub.html. The site is a complete guide for someone seeking help for writing words of condolences, sympathy messages, condolence letters and funeral planning resources.

“How to Express Your Condolences for a Loved One” by Suzie Kobler of ObituariesHelp.org

It can be difficult to know what to say when someone passes away. Death is often an uncomfortable topic, making it hard to express your feelings of condolence and sympathy to the survivor. Here are some effective ways you can express your condolences based on what is appropriate and what you feel the most comfortable with.

A Letter of Condolence

Back before technology made instant communication the norm, letters were the traditional way of expressing condolences. Even with the other options available, they are still a good way to show your support and concern. The main benefit with letters of condolences is that they can be read when it is convenient and re-read as often as needed. They can be shared with others to help with the grieving process.

When writing a letter of sympathy and condolence, you should always think about the person to whom you are writing as well as the deceased. Your letter should reflect the relationship you have or had with each person. Stay true to your personality. If you are a more formal person, then it is appropriate that your letter also sound more formal. On the other hand, if you are more laid-back and casual, your letter can also demonstrate that. Don’t be concerned that there is a right or wrong way to sound in a letter.

Messages of Condolence

Thanks to the internet, you can now send messages of support as soon as you hear the sad news of someone’s death. This allows you to offer support immediately, often when it is most needed. A quick text message or email can let the person know you heard the news and are offering your condolences without going into great detail. This is also a good method for those people that prefer short messages.

When writing a message, remember that you can keep it short and sweet. The person reading the message may be busy so it is acceptable to get right to the point. If you feel that you need to say more, you can follow up with a letter or phone call at a later time.

Flowers

If you do not know the family or didn’t know the deceased very well but want to express your condolences, it is perfectly acceptable to just send flowers or a financial donation to the organization of the family’s choice.

A simple card with a single message can convey your sympathies without requiring you to compose an entire message. This option is appropriate for many situations, including when the person is a co-worker that you only knew by name or someone you knew in passing in the community. Just make sure you include your full name so the person knows who the card came from.

A Phone Call or In-Person Visit

A phone call or personal visit is often the appropriate method of conveying your condolences when it is someone you knew very well or were related to. However, many people are not sure what to say and avoid the one-on-one interaction. The important thing to remember is that it is the fact that you called that the bereaved will remember more than what you say. In fact, don’t feel like you have to say a great deal besides “I’m sorry for your loss” or some other version.

If you are comfortable talking about the deceased, you can communicate your feelings to the person. It is appropriate to reminisce about special memories or occasions. You can even tell a funny story about the deceased person without feeling guilty. In fact, it may be just what the other person needed to hear after all of the somber moments and sadness they have been feeling.

Timing

The timing of when to express your condolences through the various methods can vary. There is no hard and fast rule. For instance, if you just heard about someone’s death even though it was six months ago, you can send a letter or email stating that you just learned of the news. You never know when your message could come at a good time to cheer them up. Grief extends long past the funeral or memorial service.

You can also prepare the way for a phone call or visit through a letter or message by saying that you will talk with them next week or in a couple of weeks.

Your Choice

Any of these methods are acceptable ways of expressing your condolences for a loved one. The choice is up to you based on the situation and what you feel most comfortable with. After all, it is more important that the bereaved feel your support than in how you choose to show it.

Many thanks to Suzie Kolber of ObituariesHelp.org for providing this guest post. Visit http://obituarieshelp.org/words_of_condolences_hub.html for practical tips to assist you in composing condolence messages for those mourning lost loved ones.

Mother’s Day Mourning

With Mother’s Day looming, my grief ratchets up several levels. It’s been over 18 years since Mom died, and I’m dreading this year’s annual event as much as I have each year since her death. It’s a selfish misery — I acknowledge that — because my mom deserved the “World’s Best” title that’s printed in flowery fonts on all kinds of merchandise this time of year.  Too many dear friends had opposite relationships with their mothers, so I truly appreciate how lucky I was.

I ought to spend Mother’s Day bathed in a warm glow of gratitude over how incredibly blessed I’ve been that my mom’s heart and hands shaped my life. But I miss her. I miss her.

She was an adoring grandmother, and I wanted my children to grow up with her creative, optimistic, spiritual, fun-loving, nurturing, curious, accepting influence and presence in their day-to-day lives. I feel cheated that they could not. I miss her for their sakes as well as my own.

My Mom (from family photos of Teresa TL Bruce)

My Mom (from the family photos of Teresa TL Bruce, TealAshes.com) 

Mom was my best friend.  (She was everybody’s friend. When I was in high school, one boy I dated sometimes called our house to talk to her.) Typing these words about her reopens the rip that began tearing around my heart the moment I heard the word “cancer” over the phone two short years before it took her. I “still” miss her.

My deep longing for Mom’s voice and warmth, for her wisdom and presence, isn’t the only reason I dread the advent of every Mother’s Day. Years ago I attended a church council planning discussion of upcoming tributes and honors for that year’s commemoration of the day. The suggestions were thoughtful and generous, but as I listened I became more and more uncomfortable until I finally blurted, “Lots of women hate Mother’s Day.

All eyes turned toward me. Other women in the room nodded their heads, but most of the men looked as if they’d been slapped. The first to recover his speech asked what I meant, and as soon as I began explaining, my church sisters’ voices joined mine:

  • “We can’t live up to the glowing superlatives on the cards.”
  • “Do you know how many women want children but can’t have them?”
  • “Some of us had terrible mothers. We don’t get along with them at all.”
  • “Some of us have bad relationships with our kids, and Mother’s Day makes it even worse.”
  • “I’ve hated the day ever since my mom passed on. It hurts too much.”
  • “And it’s agony for the ones who’ve lost a child.”
  • “And women who’ve miscarried …”

A few mouths remained open when we’d finished. One by one, all in the room acknowledged that a special sensitivity was needed in planning that particular Sunday’s services.

Men and children also struggle with missing their deceased mothers, or they may feel conflicted about poor relationships with theirs.

In the years following Mom’s death, I dragged myself into the chapel for every Mother’s Day service (though I’d have preferred staying at home to linger over my annual child-poured breakfast in bed, a bowl of Cheerios or Lucky Charms*) because that’s what I felt I needed to do, what a “good mom” should do. All the children in the congregation — including my own — were singing to all the moms, and I did want to experience seeing and hearing my daughters beam as they sang “Mother, I Love You.” That part I didn’t mind — it was always delightful! (You never know what you’ll see and hear where kids are concerned, no matter how well they’ve practiced ahead …)

But it hurt to be there. I knew the shortfalls of how my mothering compared to my mom’s. (Did I mention how great she was?) And I missed her.

What helped make it easier? While it’s true that time eased the sharpest of my grief’s pain (though it’s not true that it “heals all wounds”), eventually, at least in part, there was one thing that comforted me immediately. Whenever someone acknowledged awareness that I mourned Mom’s absence, the weight of my grief lightened enough to keep me going. It still does.

  • It always helped to hear, “I’m sure you’re missing your Mom. I’m sorry.”
  • It never helped to hear, “Don’t be sad.”
  • It never helped to hear, “Are you still upset about your mother?”
  • It can be helpful to say, “You’re in my thoughts as Mother’s Day approaches.”
  • It’s also appropriate to say, “I’m thinking of you this Mother’s Day weekend.”

As with other aspects of mourning, the best condolence you can offer is the comfort of your presence, the reassurance of your willingness to listen, and the sensitivity of your acknowledgment of the loss.

___

(*In case you were wondering, I have no affiliation with General Mills — or any cereal-making company. Cheerios and Lucky Charms just happen to be my favorites.)

Never Tell Mourners You Know How They Feel

Yesterday I heard the umpteen-hundredth expression of “I know what you’re going through.” I felt as angry this time as I have every time well-meaning people sympathized with the same sentiment over the last three and a half years. Equally infuriating is hearing “I know exactly how you feel.”

stop telling mourners you know how they feel, grief, teal scarf, hand stop, orange tree, TealAshes.com

Stop telling mourners you know how they feel — even if you think you do. (photo of and by Teresa TL Bruce, TealAshes.com)

No, you don’t.

I’ve attempted civility by biting my tongue. (Yesterday I bit my lips together, too.) When in person, I’ve tried to neutralize my facial expression and body language, and over the phone I’ve modulated my voice with care. Grief (and repeated experience over and over and over) can inspire Academy Award-worthy performances, I’ve learned.

Inside my head, though, each time someone tells me they “know” how I feel, my honest response is more visceral than a simple “No, you don’t.” Fight-or-flight takes over. My heart hammers as claws and fangs extend, my legs tense as if readying to spring, and my mouth screams, snarls, and spits the red-inked, italicized, underlined, highlighted, bold-faced, all caps reply: NO! YOU. DON’T. KNOW!

Even at my most feral moments, I acknowledge that most of those who say such things are trying to relate their pain to mine. They want to empathize, which is a good thing. Their claims, however, do the opposite. Asserting their acquaintanceship with my deeply personal pain and my struggles through grieving minimizes the unique nature of my loss, and minimizing a mourner’s experience is never a good thing. Never. Not ever.

Every relationship is unique, so no two losses are the same. When a person loses a loved one, that loss colors every aspect of life. It creates irrevocable change. It is devastating and overwhelming and pervasive and personal. When I was newly widowed, very few widowers or widows made such a claim to me. Instead, they acknowledged aspects of my loss that they didn’t share. Rather than minimizing my experience by comparison to their own, they validated the multifaceted components of my overturned, grief-ridden world.

Need an example of what offered helpful acknowledgement rather than hurtful comparison? Here are a few:

  • “I can’t imagine what you’re going through. It must be awful that you didn’t have the chance to say goodbye.”
  • “I’m so sorry you’re going through this. I know it isn’t the same, but I know how badly I hurt over my husband’s death.”
  • “I wish I could say something to make it better, but I know my words can’t help. I’m here to listen to you.”
  • “When my husband died we’d already raised our kids and retired. I can’t imagine what this is like for you.”
  • “I lost my [loved one of whatever relationship], but I know it isn’t the same. I’m so sorry.”

As I recalled and wrote the examples above, I thought, “How bleak they sound …” The truth is that in the bleakest of life’s circumstances — the loss of a loved one — the most easily absorbed consolation comes in compassionate yet dispassionate commiseration. There will be time for cheering and lightening in the weeks and months and years to come (so stick around to help provide that in its eventual time), but in the meantime, in the immediacy of the misery of the loss, acknowledging the darkness will help your friend adjust better than stories of how you made it through your own dark times — unless your friend asks for them.

You don’t know what a mourner is going through — even if you think you do. In fact, the same should be said of other sources of trial and bereavement in life. Death isn’t the only cause of grief; a true friend will acknowledge the unique, acute, life-altering nature of the bereaved’s pain.

Michelle L. wrote You Don’t Know What You Don’t Know for the Segullah.org blog on April 17, 2014. While her writing addresses other kinds of life trials facing “broken and struggling families,” her admonitions equally apply to comforting and supporting the bereaved. With her permission to share this, I’m quoting Michelle L.’s main points below, but please visit her post (http://segullah.org/daily-special/you-dont-know-what-you-dont-know/) to see the full text.

  1. If you read nothing else, remember this: extend love; refrain from judgment.
  2. Don’t even talk about taking sides. … When a family is destroyed, there isn’t a side to take.
  3. You don’t know what you don’t know. Don’t make assumptions. 
  4. Offer kindness to those who are broken. The very best words to say: “I’m so sorry you are hurting.”
  5. Avoid trite phrases. 
  6. Your experience doesn’t translate into mine. 
  7. Don’t make assumptions about anyone’s spiritual state. 
  8. Statistics don’t matter. 
  9. Don’t offer advice or chastisement. 
  10. Talk about other subjects. Look beyond the wounds to the whole person. 

Malaysia Airlines Flight 370, the Washington Mudslide, and Other Tragic Headlines Bring Grief Home Again 

One look at grieving faces on the TV news sucks me backward to 3 1/2 years ago. The agonized sobs in sound bites shove me once more into that bleak, table-sized, hospital waiting room. Again I feel the doctor’s unthinkable, impossible, unbearable words rip into my heart and shred my world. In the days, weeks, and months that followed that moment, one odd symptom of my grief was that I couldn’t bear looking in the mirror. It only took a glance to see the grief that covered my features more completely than any mask could do. Mourning permeated my pores and rewrote the face they formed.

In earlier years I’d known families forever altered by publicly acknowledged deaths. Unavoidable traffic accidents and, in one case, intentional homicide, made their personal, private bereavement subject to local news coverage.* I’d witnessed their grief up close, but I shared only a thin shadow of a sliver of the pain of their losses. I remembered how I’d felt after the expected passings of my grandparents — and my mother — and after the unexpected death of my young adult cousin. I knew my own pain, but I also knew it differed from those families’ pain in their losses.

Now, in the present, I don’t know any of the  passengers and crew who went down with Malaysia Airlines Flight MH370; I’m not acquainted with any Washington residents impacted by the massive mudslide. Yet I recognize the faces of the survivors. I once wore similar expressions of shock and horror. I’ve felt that intense, disbelieving grief that colored both the appearance and the perceptions of my eyes.

Even so, I do not claim to understand their losses. I do NOT understand their losses. Even other survivors who share the same tragic circumstances alongside them do not fully understand one another’s losses, because every loss is unique.

Let me repeat: EVERY loss is unique. Some aspects of grieving are universal, though. Remember these points when your friends grieve lost loved ones:

  1. Acknowledge the loss. (A simple, sincere expression of “I’m sorry” is one way.) Follow up with them over the lonely weeks, months, and years ahead, particularly around the date of the death. Let them know you remember their loved ones, too, and that you remember the significance of the timing.
  2. Don’t make their loss about you and your woes. Supporting the bereaved means listening, not counseling, advising, comparing, or admonishing. Every person grieves differently, and such un-listening communications invalidate the bereaved for their ways. Don’t feel the need to fill contemplative silences, either. (What you perceive as uncomfortable may be comforting simply because you are there.)
  3. Find specific, physical ways to show your support, then act on them. Whether families are in shock over a sudden death or drained from the exhaustion of care-taking prior to an expected death, survivors will find it difficult (if not impossible) to carry out the day-to-day tasks of living. Even if they realize they need help, they may not be capable of asking for it. Asking, “Do you need any help?” is likely to get a negative reply, even if the need is dire. Lend a hand (with meal preparation, grocery shopping, laundry, child care, transportation, yard work, car maintenance, dish washing …). Don’t ask, “Can I help you with ___?” Instead say, “I’d like to help you with ___. Is today okay, or would it be better [give a specific alternative time]?”
  4. Avoid platitudes; bite your tongue on most of the “condolence” phrases that come to mind. To grieving ears they sound trite and insincere. (Some are even offensive, though their speakers intend them kindly.) To the bereaved, life does not “go on” as it did before, the cemetery or crematorium is not “a better place” for their loved ones, and whether or not the deceased is “at peace” does not diminish the survivors’ sense of loss.
  5. Let them know your thoughts are ongoing. Grieving is difficult, painful, lonely work, and it can help to know others are aware of that. Be specific in expressing your support:
    “I’m thinking of you and your family daily.”
    “You’re in my prayers.”
    “My Thursday morning prayer group will pray for you every week.”
    “I’m sending positive energy your way during my daily walks.”
  6. Where appropriate, offer financial support. Even small sums can make a big difference for families struggling to pay funerary costs and adjust to a lost source of income, too.
  7. Ask if they’d like to tell you about their loved ones. Give them “permission” to talk about them and say their names. Sometimes people fear that bringing up the name(s) of the deceased will bring sorrow, but in most cases the opposite is true. Offer the bereaved the chance to talk about their feelings if they wish, but don’t badger them into conversation.
  8. Don’t push your expectations of timing onto grieving survivors. Avoid words such as “still,” “already,” “yet,” “by now,” or “when.” Grief has no timetable, and grieving takes much longer than most people realize unless they’ve experienced a similar loss. Even then, some relationships, because of private concerns, may leave more complex grief issues to be resolved than others.
  9. Remember that nothing you do will “fix” their grief. You can’t bring back their loved one or make their lives “normal” again. Normal is gone. All you can do is offer your unconditional support, understanding, and strength as they make the most difficult adjustments of their lives.
  10. Repeat all of the above. The so-called “stages” of grief wax and wane. As bereaved family members slowly adjust to the shock of their losses, new situations and circumstances will arise that send them back to earlier, more intense phases. Your long-term, ongoing support will be as important in the future as your immediate actions will be now.

___

*See Grief Is Not a Spectator Sport