Breast cancer awareness and grief–when seeing pink means seeing red, part 1

This is the first post of several breast cancer awareness experiences to keep in mind during October’s breast cancer awareness month … and beyond.

Last month marked twenty years* since Mom died of breast cancer. More than thirty years ago her mother passed of the same; so did hers.

I’m therefore acutely aware of the importance of women getting regular mammograms and being vigilant about self-exams. That’s how Mom won more than three extra years with our family.

That’s why I got a mammogram — on the twentieth anniversary of Mom’s death, the week after the fifth anniversary of my husband’s.

The fun of getting a mammogram starts with stuffing top wear into a locked cubby. Photo by Teresa TL Bruce

The fun of getting a mammogram starts with stuffing top wear into a locked cubby. Photo by Teresa TL Bruce

It’s not something I look forward to every year. (Does anyone?) This year I put it off for months, until one day I finally called and made an appointment for the first available opening.

The irony of the timing didn’t hit me until that morning.

By the time I’d sat in the backed-up waiting room an hour after my scheduled appointment, my emotions were all ajumble.

By the second time the technician told me the equipment had a “technical problem” — and the procedure had to be repeated — my pertinent body parts felt all ajumble, too.

I cried — as much from emotional pain as from physical. When the technician assured me (bless her heart) that it would “only hurt for a few more seconds” (for the record, not true), she had no way to know the far deeper, longer-lasting pain came not from the contortions she inflicted on my body but from the losses the date itself smashed against my chest.

For a few moments, I plunged back into the mode of blurting my bereavement the same way I did during the early weeks (months, really) after my husband’s death.

To her credit, the woman tried to comfort me. She put an arm around me to give me a hug — but clad as I was only in the radiology center’s flimsy wraparound top, it felt awkward and uncomfortable. (In an oddly different way, the feeling reminded me how it felt when I was newly widowed and well-meaning men friends offered hugs — which at that raw time I didn’t want from any man I wasn’t related to.)

After the second round of images was taken (this time without technical difficulties), as my hand touched the doorknob, she offered a few well-intended words:  “You’ll be okay. You just have to get past it. Everybody has to die sometime.”

WHAT!?

I’d just bared my soul (among other things) in front of this woman. I was crying because I missed my mom on the anniversary of her death to breast cancer, and missing my late husband, too. And she tried to make me feel better by reducing the validity of my grief? (Not to mention that she ignored my apprehension over the reason for the mammogram she’d just subjected me to.)

Yes, I saw red.

Please don’t say such things to those who are grieving! It’s true that everyone dies, but it’s not helpful or encouraging (or even nice) to make such losses seem everyday or expected or unimportant. 

___

*In an earlier post I rounded up the amount of time (see https://tealashes.com/2014/06/27/comfort-after-moms-funeral/).

Speak the Names of the Dead

what to say when someone dies

Speak the Names of the Dead (word cloud created on WordItOut.com)

People often mistakenly worry they’ll “make” grieving survivors feel sad by mentioning or alluding to their friends’ deceased loved ones. They’re afraid speaking up will remind them of the loss. There are two reasons this isn’t so:

  • You can’t “remind” a person of something they cannot (and should not and don’t want to) forget. Grief is rooted in love, and that love doesn’t die with the deceased. For the one grieving, no matter the relationship — bereaved parent, sibling, child, grandparent, best friend, spouse, aunt, uncle, niece, cousin, in-law, or other loving mourner — the loss is never forgotten. With time — more time than you can possibly imagine unless you’ve mourned a similar loss — the sadness will thin from a suffocating deluge to a gentle mist that moistens but no longer threatens drowning. It may at times seem imperceptible, but it never evaporates completely.
  • Most people who mourn loved ones fear that others will forget them. They may feel they have to hold tighter to the memories of their dear dead ones — because if they don’t, who will remember? Hearing others speak their dear ones’ names acknowledges they aren’t — and won’t be — forgotten. It frees them to mourn without fear of losing their memories.

Yes, your friends’ eyes may glisten (or pour) when you speak their loved ones’ names, but that’s not a bad thing. Sometimes grief fills a mourner full to bursting — and tears act as a pressure release valve.

It’s been nearly five years since my husband’s death and nearly twenty years since my mom’s. My life is rich and full (sometimes too full) and I’ve learned to live with the grief I still — yes, still — feel for them. (Thank heaven I’m way past the awful days, er, months when I blurted out variations of “My husband died” to everyone I encountered.)

But there are days when grief gets ugly again, not just for me, but for everyone who has lost someone dear. It sneaks up behind us and whispers cruel doubts about whether anyone else still cares they’re gone, about our ability to keep on keeping on, about the disloyalty of moving forward in our lives without them.

Those are some of the days when we most need to hear others speak their names. Tell us stories of what they did — good or bad.* If you knew them, tell us you miss them, too (no matter how long it’s been). If you didn’t know them, tell us you remember (and understand) that missing them goes on . . . long after they have.

___

*I realized after writing this that part of my thinking (and post title) draws on echoes of Orson Scott Card’s Speaker for the Dead. Its title character cautions survivors that he will speak the truth — the full truth — about the dead they wish memorialized.

Taboo Topics When Someone Dies–Part 5, Legal Status

When someone dies, what should you say to surviving loved ones about their legal status?

[While you wait for the answer, listen for sounds of shy, exhausted crickets …]

[… and wait …]

[… and wait …]

Is the silent treatment getting a bit uncomfortable? Only slightly? Then let’s wait a bit more …

[twiddling thumbs]

[looking around the room, avoiding eye contact]

[clearing throat to break the awkward silence]

… and … you’re still waiting, aren’t you?

Get used to it, because I can’t think of a single thing it’s appropriate to say about the legal status of deceased loved ones — or their survivors. Broaching the subject will cause far more discomfort than a pregnant pause.

What seems like a gazillion grief years ago, I started a mini-series of posts on taboo topics* with these assertions:

All grief is personal, but please don’t impose personal comments on the newly bereaved.

Unless the mourner asks you, or it pertains to your already established professional relationship, don’t bring up the bereaved person’s politics, religion, money, physical appearance, or legal status. 

Last week’s Supreme Court ruling on marriage equality reminded me I hadn’t yet posted about why legal status is a taboo topic if you want to console the bereaved. When your relative, friend, or colleague has lost a loved one, the only legal certification that should matter to you is the word deceased

Whether you’re a fundamentalist Christian preacher or the chief organizer of a pride parade or a number-crunching hospital administrator, whether the departed and their surviving loved ones are old or young, gay or straight, zealots or atheists, when you learn that someone died, your only concern should be to offer nonjudgmental consolation and comfort in any way you can.

  • Do estranged surviving spouses suffer more distress than long-term partners who stood by loved ones in unwavering fidelity? Should one group have a say in making funeral and other arrangements while the other has no say?
  • Does it matter to a mourning mother whether her child’s birth (and death) was connected to her by biology or by adoption? Does a father who truly fathered a stepchild (by day-to-day manning up to meet his kids’ emotional and physical needs — whether he legally adopted them as his own or not) grieve less fervently than one whose birth certificate – documented “fathering” was over and done with long before that child died?
  • Do bereaved best friends (who talked twelve times a day) deserve less consolation and consideration than surviving siblings (who exchanged little more than annual Christmas and birthday cards)?
  • Do legal residents mourn departed kin more than people without papers do?
  • Do felons (or their families) deserve less respect and support when someone they love dies?

Of course not.

Grieving has no limits graphic compiled by Harmony Bruce

Grieving has no limits graphic compiled by Harmony Bruce

Grief is an outcropping of love. When death severs us from those we love, grief pours from the wound. Like love, it cannot be legislated into neat little boxes on government-issued forms. What can be, and should be, and now has been legislated, is greater ability for people to decide who will deal with the business and legal sides of their final goodbyes.

Whatever the mourner’s legal status, whatever the legal definitions of relationships between people, it’s not up to anyone else to concern themselves with the details. For the rest of us, our job is to simply say “I’m sorry” and to show up without comment, bringing with us only our kindness — whether that’s demonstrated by casseroles, consolation, or (if appropriate) even cash.

___

*To see the first post in the taboo topics series, visit
Taboo Topics When Someone Dies–Part 1, Politics

Lost, Found, and Lost Again–Goodbye, YWBB

Several weeks after my husband died, a friend of a friend suggested I visit a website for young widows. Like me, she’d been widowed not long before, and she’d found it a balm for her wounded, bereaved soul. When our mutual friend mentioned it to me, I balked. How could I — why would I — ever consider putting my most raw, vulnerable feelings “out there” under a made-up user name to converse with strangers in a forum that anyone in the world could read?

(Says the woman whose blog now does just that, but in her own name …)

I resisted the invitation to check out the website, but my friend persisted, insisting it had helped her friend and that it could help me, too. After fending off several promptings from her, I finally typed in the site address. (I figured I’d give it a quick glance so I could tell her I’d done it — so she’d stop asking.)

What I didn’t know then, but quickly learned upon my first look at the site, was that it was FILLED with others who’d suffered their own similar, devastating losses. I believe there were about 17,000 registered users at the time — a staggering number considering I was the only young widow I knew then.  It was one thing for friends and family to reassure me, “You’ll be okay, Teresa. You’ll get through this.” Their words were positive and encouraging and appreciated and … emotionally unbelievable.

How could any of the people in my “real life” know what it meant to suddenly, unexpectedly be “relieved” of 24/7 soul mate caretaking? How could they relate to the weight of being the sole, surviving parent of college and high school students? How could they assure me that things would “be okay” for my kids (and me) while life as we knew it tumbled apart and away in grief and loneliness and shock and a thousand other irrevocable daily changes…

Within seconds — yes, seconds — of my first glance at the Young Widows Bulletin Board (YWBB), I felt the weight of “aloneness” slip from my shoulders. These people were my people, from all walks of life, from just about every corner of the globe. All knew the self-severing pain of losing their other halves. All wore the wounds of widowhood.

They assured me it was okay to cry whenever (and wherever) I needed to. They reminded me I needed to breathe deeply and drink more water to cope with the physical stresses of bereavement. They understood why I couldn’t remember to prepare meals (or eat them), why I got lost driving within my neighborhood, and why simple errands left me sobbing. They shared the same physical cravings for their companions.

With these, my new peers, I was home.

They didn’t tell me to “be happy” for his lack of ongoing suffering or to “be glad” it was quick. They didn’t tell me when I “should” feel this way or that. They didn’t reassure me he was “in a better place,” even when they believed it as firmly as I did. They didn’t minimize his absence by “consolation” that I was “young enough” to marry again.

They acknowledged, and therefore validated, my pain.

In the years since I took that first glance, I grew to know and care about many of “the regulars” and before long I found myself in the role of nurturer for the newly widowed. I’ve met with many of my friends from the site and formed lifelong bonds. In time, I leaned on the YWBB less frequently as I grew and healed and found other sources of solace and support.

But it was always there as an emotional backup.

Until today.

The site recently announced it would forever close as of March 20, 2015. Over the last couple of weeks, I’ve frantically poured spare minutes into the painstaking, time consuming process of copying and pasting my archived posts into my personal journal. I’d made a lot of comments over the years, so the process took HOURS. I had about 60 comments to go (out of more than 1300) when at midnight this message appeared:

Young Widows Bulletin Board signs off

It is gone. I knew it was coming, and yet … I mourn anew at its passing.

Worse, far worse, early this morning — between the time I began drafting this post and the time I finished it — a friend joined the ranks of the young widowed. She’s a woman of great faith; please offer a prayer (or two or more) in behalf of my friend and her family. My heart hurts for her (and for her children) and I want to — I wish I could — walk her gently to the place of my now-missing lifeline. 

There are other sites available now, and I’m sure they will offer complete camaraderie and sustaining support, too. But they won’t be the same.

___
(By the way, Cynthia and Eileen, thanks again for your kind, well-aimed nudges toward what became a source of strength and encouragement when I so badly needed it.)

People Aren’t Interchangeable (and Neither Are Their Pets)

Loved ones can’t be replaced. So please don’t suggest otherwise.

Loved ones can't be replaced, so don't suggest otherwise.

An empty blanket, an empty collar, and an empty ring: Loved ones can’t be replaced, so don’t suggest otherwise.

When people (or pets) expire, mourners can’t scoop up “bargain-priced offspring” from the children’s department; they won’t rush to the store and click a collar around a “brand new best friend” package in the pet aisle; they shouldn’t be driven to the mall for sniffing and squeezing current models in order to select a “ripe new spouse” from the potential mates display window. (At least, for most people it doesn’t work that way…)

Forgive me, please, if it sounds as if I’m making light of the seriousness of death. My intent is to point out the ridiculous assumptions made by well-meaning people who treat the bereaved in this foolish way.

For example, the first variation I heard on “You’re young. You can marry again” was less than 48 hours after my husband’s death. It was an (arguably misguided) attempt to assure me I need not feel lifelong devastation and solitude. But deep as I was in that personal place of raw, recent loss,  life as I knew it had already immersed me in devastation and loneliness.

I could no more have “replaced” my late husband while thus submerged (nor contemplated the idea of it) than I could have inhaled deeply from the bottom of a full swimming pool.

For those who mourn the death of a child, there’s nothing assuring in the agony-increasing comments of those who try to “comfort” them by promises of possible future children. Doing so ignores the life-altering, soul-searing loss of THAT precious, beloved child.

Pet owners face their own grief at the passing of beloved companions. Well-meaning friends might suggest it’s “only a pet” or “you can always get another one,” but the bonds between pet owners and their furry (or feathered or scaly) friends are as unique — and can run as deep as — friendships (and deeper than some kinships) between members of the same species.

More helpful than such “reassurances” of suggested “replacements” are acknowledgements of the loss. Offer comments like:

  • He was such a ____ [kind, thoughtful, funny, interesting…] soul. I’ll miss him, too.
  • I’m so sorry about the death of your ____ [child, parent, friend, sibling…]. I know you’re hurting.
  • Fluffy was a good ____ [cat, dog, hamster, sugar glider…]. She’ll be missed.

In time, grieving parents might have another child; bereaved animal lovers might adopt other pets; mourning widows (or widowers) might date and perhaps even marry again. But they might not. There may be reasons they cannot, reasons that are no one’s business but their own.

In the distant future, even if the mourning parent welcomes another child, even if the grieving owner takes in another pet, even if the bereaved widow(er) finds a second soul mate, each newly loved one finds his or her OWN place within the healing heart once broken by the death of the deceased.

Remember: Beloved souls aren’t interchangeable — even within species. You can’t remove one from a person’s life and simply plop another into the deceased one’s place.