Grief Reboots after Holidays

(Please forgive the shouting capitals that follow.)

The tinsel and lights are down, the trees await recycling, and the yearly battle (or pretense) to lose holiday pounds has begun. Around the globe, people brush hands together in satisfaction (and relief) that “the holidays” are past while life slips back into normal routines. Except … In the post-holiday “normalcy” of decorations coming down and social calendars clearing, the emptiness of bereavement surges.

Have you ever unwillingly started over? Imagine access to NONE of your personal or professional contacts or calendars, property, medical records and appointments, project files, programs, passwords, accounts, or data? Multiply that by at least a thousand and you may begin to imagine the rewriting that occurs in the hearts and minds of the bereaved. (In many cases, when a loved one’s or business partner’s death left unknown account passwords or non-transferable titles, this rewriting is not only in emotional and mental processes but also in practical matters.)

For those whose loved ones have died, “normal” no longer exists. (So please, please, please, NEVER tell a mourning friend that “life goes on.” Never ever. It is NOT comforting! Ever.) It’s true that in the earliest months after my husband’s death, I observed that (A) other people’s lives “went on” exactly as they had before, and (B) I was more-or-less alive, so in some fragmented slivers of my soul I (eventually) saw for myself that life continued. I didn’t want (or need) to hear “life goes on,” because life for my family and me was FOREVER ALTERED. Our lives did NOT “go on.” They shut down without warning in an agonizing rebooting that left no backup files and required each of us to learn unfamiliar operating systems in a foreign language not compatible with our hardware.

I’d like to thank you if you were among the neighbors who dropped off casseroles, the friends who attended funerals, or the well-wishers who sent notes of condolences to coworkers, family, or even acquaintances who lost loved ones in the past year. Well done. (And on a personal note, I’m forever grateful to those of you who have comforted me and my family by mourning alongside us in both trials and triumphs through the years!) Thank you all for “being there” at the beginnings of friends’ grief journeys.

Now, whether you did or didn’t step up at that time, pardon me for sounding bossy, but GET BACK TO WORK at it. (Please.) Your grieving friends probably need your support more now than they did in the earliest days, weeks, and months after the deaths.

For those whose loss(es) occurred recently, the blurring fog of shock obscured traditional transitions from the old year to the new. As they reawaken to the disorienting world around them — life as they did NOT know it before — caring gestures of friendship and concern may help them reorder their surroundings. They won’t be ready to rebuild yet, but gestures of kindness (whether messages of ongoing awareness or invitations to interact) will help newly bereaved friends begin to feel the ground under their feet, even if they aren’t yet strong enough to stand upon it.

For those approaching anniversaries of loved ones’ deaths (whether in the first year or beyond), such demonstrations of caring and commitment are just as important. People need to know their beloved departed aren’t forgotten. Let them know that you know it has been a year (or two) since their dear ones died. Let them know that you are thinking of them on the birthdays their loved ones will not be present to celebrate.

Let your friends know you respect their grieving as acknowledgment that love lives on, even past death.

Taboo Topics When Someone Dies–Part 4, Appearance

Grief is more than an emotional response to bereavement. Grieving impacts every aspect of mourners’ lives — including body systems — in ways they shouldn’t be pressed to discuss. Avoid personal comments about the appearances of mourning friends.* Even if you have a professional, looks-related relationship (as a dermatologist, hairdresser, personal trainer …), or even if the bereaved asks your opinion, guard your tongue. Comments on visible physical symptoms of my loss only deepened my distress.

Stop and think before making personal comments on mourners' appearances

Stop and think before making personal comments on mourners’ appearances

Avoid “about face” comments.

I’ve always been suntan-challenged, but as a new widow I looked paler than usual. I didn’t benefit from others pointing it out. In shock for weeks (months, really), I was oxygen-deprived from improper, incomplete breathing.  I’d taken only shallow breaths — for weeks. It took conscious effort to fill my lungs. Most people grieving new loss forget to breathe fully. An acupuncturist friend, Natalie Doliner, taught me that in traditional Chinese medicine (TCM) the lungs are recognized as “organs of grief.”

My skin went crazy. Within days after my husband’s death, my face started shedding. I looked as if I’d suffered a colorless, peeling sunburn. Self-conscious, I preferred not to be seen in public. When I ventured outside, comments like “Do you know you’re peeling?” sent me back into my shell.

My hands, arms, and legs bore scratches, scrapes, and bruises, though in new grief’s fog I seldom noticed what I’d run into or how I’d cut myself. It was helpful to hear “Excuse me, do you know you’re bleeding?” It was never helpful to hear “Wow, what happened to your arms?” I didn’t know.

Avoid “tiresome” reminders of exhaustion.

I never appreciated comments about dark circles beneath (or bloodshot veins in) my eyes. I already knew I looked tired! Hearing “You should get more sleep” didn’t prevent grief-related nightmares from jolting me awake (on the rare occasions grief insomnia allowed me to sleep at all). Such comments felt like unjust scolding and reminded me there was too much empty space in my bed.

Avoid mentioning “weighty matters,” either gained or lost. 

Mourners won’t tell you embarrassing ways grief impacts digestion — and they shouldn’t have to. I hated explaining (as diplomatically as I could), “I can’t keep anything down,” or “Everything I eat rushes out the other end.” Nausea, vomiting, and diarrhea (I later learned) are common in bereavement. Mourners shouldn’t have to justify why they do (or don’t) want to eat or how that impacts their appearance. 

This should be obvious (but my experiences proved otherwise): I didn’t appreciate reminders that I’d lost or gained weight while grieving. Unless mourners mention their weight to you (and perhaps even then), keep weight-related observations and opinions to yourself. 

I lost more than 20 pounds in a few weeks as a new widow, more than 30 in a few months, but it certainly wasn’t a healthy (or sustainable) way to lose weight! I despised everything about the grief-induced “death diet” inflicted on me, including well-intended reminders about how “good” I looked because of it. Over and over I endured conversations like this:

“Wow, you look great! How’d you lose so much weight?”
“Umm … I forgot to eat.”  Or couldn’t keep it down …
“No, really. How’d you find the willpower? I’d kill to lose that much.” [Yes, someone said that.]
“My husband died.”
“Oh … [insert awkward pause and/or dismissive shrug] Well, at least you look good.”

There was nothing “helpful” about being urged to eat more when I had no appetite — or to eat less when my appetite resurfaced with a vengeance that was (pardon the pun) “fed” by grief. Within months I gained double the amount I’d lost. It took a full year of hard work to reach a zero net weight change before I began moving toward a healthier range.

Picture the whole person before you click.

I still seethe over one  against-my-protest  snapshot taken during my first year as a widow. It wasn’t about my bad hair day or ill-fitting outfit (though if it had been, even those concerns should have warranted better respect). It was about the PAIN of LOSS I saw EVERY time I couldn’t avoid a mirror. My eyes reflected bereavement, and (like people who believe cameras steal souls) I felt that shutter sever my gossamer connection to my surroundings that day — and (even though I’ve long-since forgiven the snapshot-taker, sort of) I still feel the reverberations of that click. If mourners balk at having pictures taken (of themselves or the deceased), LISTEN — and honor their requests! 

When it comes to personal comments about bereaved friends’ appearances, “no comment” is the best option.  Instead say, “It’s good to see you,” and leave it at that.

___

*I talk about other taboo topics — politics, religion, money, and legal status — in other posts. (And yes, I still appreciate the irony of talking about things you shouldn’t talk about.)

Thanksgiving and Thanksgrieving

This is my fifth widowed Thanksgiving, and it’s the first year I’ve been up to preparing a traditional meal for our family. Extended family circumstances meant we had our celebration on Sunday, half a week before “real” Thanksgiving Day. It was a wonderful gathering of family and friends, and in almost every moment I basked in watching loved ones laughing, talking, teasing … almost like the years B.G. — Before Grief. Even so, I don’t think I could have mustered the energy — or the will for it — had we met on “real” Thanksgiving Day. 

From the earliest hours after my husband’s death I’ve been grateful for many tender mercies that blessed me through my darkest hours. That doesn’t mean I’ve walked around like Pollyanna playing “the glad game” over the pains and practical problems of grieving. There are many, many aspects of my husband’s never-diagnosed mental and neurological deterioration and his sudden, unexpected death that I cannot  honestly say I’m grateful for. (Perhaps not “yet.” Perhaps not ever.) But I’ve seen sparkles of sunlight (loving gestures from family and friends, personal and professional growth, life lessons learned, and multiple mini-miracles of circumstance) while stepping through otherwise impenetrable days. I continue to appreciate each pinprick glint of goodness as it comes.

HOWEVER, I had to see those glimmers of gratitude for myself. Hearing others say, “You should be grateful that…” or “Aren’t you thankful for…” did not help when grief was a raw, festering sore in every step I took. It didn’t help while I began learning to live with grief’s limp, moving forward but with faltering, often errant steps. It still doesn’t help now that I walk (and sometimes run — though briefly) with my grief-acquired gait.

What did help, and what still helps, is when people reach out to me, when they acknowledge their awareness that grief has altered my path. When grieving souls (like mine) are ready and able to lift their eyes to see the beauty or the genius in the surrounding landscape, they will. They will know when they are ready to look up. You will not. Do not tell your grieving friends where they “should” look — you’ll distract them from placing their wounded feet on safe terrain.

Instead, let them know you’re nearby with your arms outstretched, ready for them to grab hold if they need somewhere to lean. Instead of wishing them a “Happy Thanksgiving,” especially if the loss is as recent as two years, say, “I’m thinking of you on this Thanksgiving Day. I know it’s different. I know it’s hard. I’m here for you.”

UPDATE:

I’m amending this post to include the words of my friend, Andrea Rediske. She and her family have experienced their own battles with love and loss as they grieved their oldest son’s years of medical crises and as they now grieve his still recent passing in February 2014*. I asked Andrea’s permission to share her poignant, clear, insightful perspective to help better educate those who wish to support grieving friends, whether they grieve impending or final losses.

From Andrea:
I wrote this blog post about 4 years ago, after Ethan had had a particularly difficult year. I wish I could summon the same anguished serenity that I felt when I wrote this. I DO have many things to be grateful for: my husband, children, family, friends, my health, the opportunity to pursue my PhD, and many more. But am I grateful for nearly 12 years of witnessing my son fight every day for his life? Am I grateful to have sat at his bedside when he died? Am I grateful for the grief that regularly blindsides me? Nope, nope, nope, nope…
http://segullah.org/daily-special/give-thanks-for-this/

When grief “regularly blindsides” your bereaved friends (as it does with the regularity of a clock ticking off every second of every day), be sure you offer them your outstretched arm in that darkness. Bite your tongue if tempted to preach Pollyanna practices. Instead of telling mourners what to be grateful for, listen to what they have to say — without judging them for saying it.

______
* Please see https://tealashes.com/2014/02/21/ethan-rediske-act-supports-my-grieving-friend-and-many-other-families/ to learn more about Ethan Rediske.

Wear Blue for Children’s Grief Awareness Day the 3rd Thursday of November

The Children's Grief Awareness Day Hope Butterfly http://www.childrensgriefawarenessday.org/

The Children’s Grief Awareness Day Hope Butterfly http://www.childrensgriefawarenessday.org/

Thursday, November 20, 2014 is Children’s Grief Awareness Day. (It’s held every 3rd Thursday of November, the week before Thanksgiving’s 4th Thursday.) To learn more about the event, check out http://www.childrensgriefawarenessday.org/.

I wear teal 364 days a year, but on Children’s Grief Awareness Day you’ll find me in blue, and I hope you’ll join me. Even professionals who work with children daily need to better understand and be aware of the unique needs of grieving children.

I’ve networked with many, many souls who have lost loved ones. I’d like to share one example of why #CGADHope is so important. I do so with permission, but with key identifying factors altered. In honor of CGAD, I’ll call this widow “Mrs. Blue.”

Mrs. Blue’s husband died early one school year. Understandably, Child Blue’s academic year held many challenges and adjustments. As the first anniversary of Daddy Blue’s death approached, Child Blue faced greater academic and emotional struggles. The fog of new grief was gone, and the real work of grieving was in full swing.

Before school began, Mrs. Blue contacted school officials, attempting to put into place strategies and awareness to help Child Blue weather that grief-strewn time of year. Sadly, the school wouldn’t allow a meeting with all necessary parties until November (ironically, near Children’s Grief Awareness Day), months after the start of the academic year and the first anniversary of Child Blue’s father’s death.

At the meeting, Dr. Clueless, one of the most necessary of the necessary parties, sat down and brusquely said, “I see Child Blue’s grades and attendance started slipping last fall. What happened?”

Mrs. Blue’s jaw dropped. She’d included the “what happened” reason and background information in all the emails and phone calls she’d made since before the school year began. Even the other necessary parties in the room stared at Dr. Clueless. One of them, Ms. Aware, finally answered, saying, “Child Blue’s father died last fall.” (Mrs. Blue still couldn’t speak.)

Without even a perfunctory “sorry-for-your-loss” or “this-must-be-difficult” acknowledgement to Child Blue (whose attendance was required for the school to finally hold the meeting), Dr. Clueless displayed even worse ignorance. Dr. Clueless responded to Ms. Aware’s statement by saying, “Yes, but that was last year. What’s Child’s problem this year?”

True story.

At a follow-up meeting, Mrs. Blue and Dr. Clueless were the only ones in the room before the others arrived. Because of Dr. Clueless’s comments at their prior encounter, Mrs. Blue asked, “Dr. Clueless, have you ever worked with any other children who’ve lost a parent?” She was stunned to learn that Dr. Clueless had, in fact, worked with many, many grieving students over a 20-year period.

How sad that in all those years, Dr. Clueless had not developed an awareness of children’s grief and grieving. How fortunate that Ms. Aware, in far less than half that time, had developed such an awareness.

For more information on ways you can help bereaved children, see my Helpful Resources page or check out last year’s post on the subject, For Grieving Children …

Taboo Topics When Someone Dies–Part 3, Money

Part 3 in this series on taboo topics (*see below) focuses on money matters and why you should leave them alone.

Would you walk up to random people and pat them on the stomach? Of course not, except… Have you ever noticed that insensitive relatives, acquaintances, or even strangers will do that to women in the latter months of pregnancy? No matter that it’s intrusive, rude, and creepy. (It happened to me, more than once.)

Would you walk up to random people and ask them about their finances? Of course not, except… Have you ever noticed that insensitive relatives, acquaintances, or even strangers will do that to mourners in the earliest days and months of bereavement? No matter that it’s intrusive, rude, and creepy. (It happened to me, more than once.)

Here is what you need to know about the finances of those who are grieving:

1) Their finances are none of your business — unless

the bereaved asks you about money matters, concerns, or questions (in which case, you should limit your words to providing direct answers, not asking them questions or making assumptions), or

… you already have a professional financial relationship to the bereaved (and/or the deceased) as their financial or insurance adviser, accountant, broker, loan officer, etc., and your inquiries are

relevant to that relationship,

timely for the altered needs of the survivors, and

mindful that most major decision-making should be delayed for at least a year.

2)  Financial gifts may be desperately needed by bereaved families, even though mourners’ finances are none of your business. If the deceased was the primary (or even secondary) breadwinner in a family, the sudden loss of income can be financially devastating. Even small monetary gifts can help offset expenses, and they will show your tangible support for friends who have lost loved ones.

3) Death is expensive for its survivors.

Whether the death was expected (due to age and/or health issues) or unexpected (due to undiagnosed health matters or external forces), there are likely medical expenses. Big medical expenses. These may include (but aren’t limited to) doctor, hospital, and ambulance services (**see below for a digressive rant). The financial costs can be huge, and the emotional costs of drawn-out payments for treating the already-deceased loved one can be just as difficult to pay.

Funeral, burial, and cremation expenses can be prohibitive and drain a family’s financial reserves. Payments are often required up front. My home (and the land it stands on) still belongs to my mortgage company as much as it does to me. Even after it’s paid off, I’ll still owe property taxes as long as I own it. How awful it is that the only land I’ve purchased and own “free and clear” is fully uninhabitable: my husband’s burial plot.

Legal and business fees add up. I remember the sticker shock of having to pay for changing the title of my husband’s car to my name before I could sell it. Various accounts and deeds can cost even more. Eventually, every legal document or business account once in the name of the deceased must be updated, closed, or renamed, and these transactions can be costly.

 4) Not everyone has adequate — or any — life insurance (***see below).

Don’t assume.

Don’t judge.

Preexisting health conditions, finances, or emotional constraints may have prevented purchasing such policies.

5) Life insurance payments feel like blood money. They are not windfalls or fun lotto winnings. Their intent is to pay for current and future life expenses for the surviving beneficiaries.

ONLY named beneficiaries have the right to decide how such funds should be spent. Period. If you have an opinion on how it should be spent, keep it to yourself.

Do NOT ask about or comment on life insurance amounts. The subject is not only private — it’s painful. Survivors who are asked about whether they received life insurance payments may feel cornered or pressured into discussing details that only their financial advisers should be privy to. (Remember #1 on this list!)

Don’t ask to borrow money from life insurance funds.

I apologize if this post feels stern. I’ve developed a pretty thick skin by now, but I still remember some people’s intrusions during my earliest months of widowhood. Many meant well. I understood their concern for my well-being, and I continue to feel gratitude for the gifts generous souls sent our family at that time. However, I also recall the inappropriate questions of those who were more interested in satisfying curiosity than consoling my family.

___

*I talk about other taboo topics — politics, religion, appearance, and legal status — in separate posts (while, yes, talking about the very things you shouldn’t talk about).

**My digressive rant:
The ambulance bill provided a double shock. The 5-minute “ride” cost more than $150 per mile, and when I received my credit card statement verifying payment, the expense was listed under “travel and entertainment.” While I appreciated the efforts of the EMTs who responded to my 911 call, and I didn’t begrudge paying for their efforts (fruitless as they were), seeing the cost listed as “travel and entertainment” infuriated me. Still does.
(Okay. Rant over now.)

***If you’re on the fence about purchasing life insurance and you have dependent family members, do it. NowEven small policies can help. I hope you outlive your policy, but if — Heaven forbid! — The Worst Thing (your death) should happen to your loved ones (as it did to me and mine when my husband died), having a financial cushion may be of indescribable help to them, even if it is a small one. [Note: I’m not endorsing any company or industry by saying this. I’m sharing first- and secondhand experience.]