loss

07/12/2015

Speak the Names of the Dead

what to say when someone dies

Speak the Names of the Dead (word cloud created on WordItOut.com)

People often mistakenly worry they’ll “make” grieving survivors feel sad by mentioning or alluding to their friends’ deceased loved ones. They’re afraid speaking up will remind them of the loss. There are two reasons this isn’t so:

  • You can’t “remind” a person of something they cannot (and should not and don’t want to) forget. Grief is rooted in love, and that love doesn’t die with the deceased. For the one grieving, no matter the relationship — bereaved parent, sibling, child, grandparent, best friend, spouse, aunt, uncle, niece, cousin, in-law, or other loving mourner — the loss is never forgotten. With time — more time than you can possibly imagine unless you’ve mourned a similar loss — the sadness will thin from a suffocating deluge to a gentle mist that moistens but no longer threatens drowning. It may at times seem imperceptible, but it never evaporates completely.
  • Most people who mourn loved ones fear that others will forget them. They may feel they have to hold tighter to the memories of their dear dead ones — because if they don’t, who will remember? Hearing others speak their dear ones’ names acknowledges they aren’t — and won’t be — forgotten. It frees them to mourn without fear of losing their memories.

Yes, your friends’ eyes may glisten (or pour) when you speak their loved ones’ names, but that’s not a bad thing. Sometimes grief fills a mourner full to bursting — and tears act as a pressure release valve.

It’s been nearly five years since my husband’s death and nearly twenty years since my mom’s. My life is rich and full (sometimes too full) and I’ve learned to live with the grief I still — yes, still — feel for them. (Thank heaven I’m way past the awful days, er, months when I blurted out variations of “My husband died” to everyone I encountered.)

But there are days when grief gets ugly again, not just for me, but for everyone who has lost someone dear. It sneaks up behind us and whispers cruel doubts about whether anyone else still cares they’re gone, about our ability to keep on keeping on, about the disloyalty of moving forward in our lives without them.

Those are some of the days when we most need to hear others speak their names. Tell us stories of what they did — good or bad.* If you knew them, tell us you miss them, too (no matter how long it’s been). If you didn’t know them, tell us you remember (and understand) that missing them goes on . . . long after they have.

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*I realized after writing this that part of my thinking (and post title) draws on echoes of Orson Scott Card’s Speaker for the Dead. Its title character cautions survivors that he will speak the truth — the full truth — about the dead they wish memorialized.

06/16/2015

Grieving Lost Minds: Go Purple for Alzheimer’s and Brain Awareness Month

“Have you lost your mind?” For most it’s a rhetorical question, but for 47 million people, the answer is a tragic yes.

I’m not talking about “losing your mind” in heated moments when stress clutters thinking or when you’ve reacted rashly during a brief lapse in judgement.

I’m also not talking about the fog of grief that messes with your mind after loved ones die (although as a new widow I felt I had lost it).

I’m talking about dementia, a general term for impaired thinking caused by brain damage — dead brain cells. Whether dementia patients suffer because of injury, illness or age, they have literally lost parts of their minds. And that loss inflicts a unique grief.

I’ve written and rewritten this post for two weeks because, as much as I wanted to put the information out there, the topic is too close to home for me.  (More on that later.)

According to the Alzheimer’s Association, June is “Alzheimer’s and Brain Awareness Month,” and purple is its color.  You can find more information, including facts and ways you can help, by visiting their website here:
http://alz.org/abam/

Global facts and national statistics are important, but the devastation of dementia  is personal. It erodes people of every age, and it damages the health and well-being of patients’ families, too.

The grief and frustration of dementia come from living with two (or more) symptoms of life-impeding mental deterioration:

  • short- or long-term memory loss
  • illogical thinking or diminished reasoning
  • skewed sensory perception
  • unfocused attention
  • mangled communication

In many cases, patients recognize their own decline and grieve what they know they’ve lost. Let them know you recognize areas of cognition they still have.

Let them know you will “be there” to step in with them in whatever areas they need help in.

Let them know they can count on your friendship.

Other sufferers don’t recognize their own impairment and may resent the necessity of being cared for by others.  Caretakers need as much support as the patients.

I did.

My familiarity with “brain awareness” stems from other dementias which afflicted beloved, once-functional minds in my family.

I cared for Mom when breast cancer metastasized into her brain, and I catered to (and placated) her father when age dulled and bent his once razor-sharp mind. I listened as relatives on the other side of the country tended to spouses with mental deterioration from specific illnesses. I worked alongside family (and a wonderful home health aid) in dealing with my almost 95-year-old great-aunt’s diminished mental capacity.

And I endured the 24/7 stresses of my barely middle-aged husband’s mental deterioration.

He was 45 when symptoms appeared. At first, I didn’t realize my hubby’s occasional absent-minded lapses were evolving into debilitating short-term memory loss. One month he was “distracted” while paying bills,  and he mailed checks to company A (in amounts for company B’s invoices) inside envelopes addressed to company C. He returned from work or short errands with our car displaying an increasing number of dings, scrapes, and dents. (I later learned his spatial processing was amiss. More than once he “emptied” large, full trash cans “into” smaller, already full wastebaskets. Not successfully.)

By the time his boss called to express concern, things were worse. If asked to perform simple, familiar tasks in their necessary 1-2-3-4 sequence, my husband would dig right in — beginning with four, but completing it poorly. On good days he might then remember to do the first step (now out-of-order), but items two and three? — not at all.

A few months after that call, my husband began what we both hoped would be temporary medical leave as we sought answers and treatment for these (and other) increasingly bizarre symptoms he displayed. He was 46 when a neurologist, one of many doctors we’d seen, made a casual remark including the phrase, “… aside from your husband’s obvious dementia …”

(If my life had a soundtrack, this is where the record needle would SCREECH.) The voice in my head screamed, WHAT?!

I didn’t hear the rest of the neurologist’s sentence. I had to ask him to repeat it. 

Dementia?! That’s for old people, I’d always thought.

I had a lot to learn, and the school of experience was a harsh teacher.

Here’s what I wish I’d known then about how to support people who do or don’t recognize their own dementia — and how to support their exhausted, emotionally drained caretakers:

  • Give them a break. When one person cares for another round the clock, it gets to be too much. TOO MUCH. A change of face can give a boost to both the patient and the caretaker. Even if the patient is confused by the change in routine, even a brief respite can make a world of difference. Offer to sit with the patient (and show up) so the caretaker can get out and about. Or if health permits, take the patient to the store or out for a walk so the caretaker can tend to self-care or other tasks difficult to do with the patient.
  • Don’t take “no” at face value. Your help is needed, whether it’s asked for or not. I don’t mean for you to bully your friend into accepting the above offers, but be persistent and creative in finding ways to help that your friend can live with. If they won’t let you bring in dinner, send them a gift card (or even just a note of encouragement) in the mail. Do something.
  • It’s not worth fighting over. Patients with brain impairment see the world in illogical ways. Their warped perceptions are as vivid and real to them as yours are to you. Arguing to “make” them see reality is both pointless and cruel; it further upsets and agitates everyone, including those with already confused minds. Humor them whenever possible.

Here’s an oversimplified example I’ve fictionalized (by altering details) from one true situation. The father in this scenario, a retired teacher, is anxious and fidgety. “I don’t want to be late. They’re waiting for me.”

His adult children ask, “Who’s waiting, Dad?”

“I have parent conferences today. I need my students’ files so I can get their grades out.”

Each time the son says, “Dad, you retired ten years ago. You don’t have any students. You don’t have to go anywhere,” his father becomes more agitated.

When the daughter says, “Dad, it’s great that you don’t want to keep anyone waiting. You’re always on time. The parent-teacher conferences are done now. You turned in all the paperwork and grades before break started,” Dad (hopefully) is appeased, at least temporarily.

  • Safety first. Having said what I did about humoring the dementia patient, help the caretaker ensure safe practices. Enlist a doctor, home health aid, trusted friend, or neighbor to take away car keys when judgement or reflexes make driving unsafe. Install safety locks and/or alarms on doors and windows for patients prone to wander at 2:00 a.m. Remove the knobs on the stove in homes where a burner might not be turned off again. Lock up prescriptions for those who may think it’s a new day every time they doze off and take a week’s worth of morning medicines before afternoon.
  • Listen up, and let the tears flow. Crying can offer a healthy release of emotion for both patient and caretaker. The loss of mental function creates ripples of grief as caretakers mourn a myriad of associated losses. Future dreams are abandoned when a loved one’s personality dies bit by bit, changing their dear one into a helpless or demanding “stranger.”
  • Repeat. Whatever support you can offer will be appreciated and will make a difference, but as their loved ones’ ongoing deterioration chisels increasing degrees of independence and personality from them, your friends will need your help again.

And again.

Till death does them part.

Then the caretakers will need your understanding — again — as the permanence of new grief kicks in.

When that happens, don’t tell them how happy they should be their loved one no longer suffers.

Don’t ask if they’re relieved their responsibility is finally done.

No one should be made to express or justify grieving emotions until (or unless) they feel ready to do so. Just be with them in the meanwhile.

#ENDALZ #GOPURPLE

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Each summer solstice, the Alzheimer’s Association sponsors The Longest Day to raise awareness (and funds). For information on this year’s team-oriented event (June 21), visit
http://act.alz.org/site/TR?fr_id=6650&pg=informational&sid=20684

 

05/24/2015

Why Memorial Day Isn’t For You | SpouseBUZZ.com

I seldom repost other blog articles, but this one by Traci Moran has stayed with me since I read it a few days ago. My friend, Lynette Wilson, brought it to my attention on Facebook. This is what she said:

Please, for so many of us, Memorial Day is a solemn occasion, one meant to honor those men and women who gave the ultimate sacrifice in defense of their country. Please don’t trivialize the emotions by including “Happy” before it. Please know this weekend shouldn’t be about the big sales, the big barbecues, the big parties.

Take a moment and think of the fatherless and motherless children, the parents who outlived their sons and daughters, the wives and girlfriends, the husbands and boyfriends who miss their sweethearts every day. Remember those lives lost in defense of your freedoms. Freedom is never free. ——Lynette Wilson

Generations of my family have commemorated Memorial Day with graveside readings and remembrance gatherings for departed ancestors, including emphasis on those who gave their lives in service. On Memorial Day I cannot help but be mindful of my recently deceased great-aunt who belonged to the DAR and who every year made sure fresh flowers covered ancestors’ otherwise obscure graves. I’m achingly aware of my husband, mother, nephew, cousin, brother-in-law, father-in-law, grandparents, and all other loved ones who’ve crossed behind the veil where I can no longer see, hear, or touch them.

However, I also know Memorial Day isn’t about me or my losses. It’s about those who have served and died. It’s about remembering them, honoring them, mourning them, and living in gratitude to the debt we owe them — and their families. It’s about recognizing the prices they paid.

Please read Ms. Moran’s article:

Why Memorial Day Isn’t For You | SpouseBUZZ.com.

And please remember.

05/20/2015

Letterman’s Last, Rachael Ray’s Recipes, and Loss

David Letterman’s last broadcast. Rachael Ray’s five recipes. May 20, 2015, might be a tough TV day for mourners.

If you’ve watched any late-night American TV in the last 30 years, you’ve seen David Letterman on CBS’s Late Show (or in earlier years on NBC’s Late Night).  Whether you glimpsed him during rare bouts of sleeplessness or your rest depended on counting down his “Top Ten” instead of sheep, you’re probably familiar with his often irreverent and occasionally tender entertainment presence.

Like ocean waves, tax hikes, summer sun, and family genes, I took that presence for granted — until the announcement of his retirement.

Millions will tune in for Letterman’s final show.

I’m not sure whether I will or won’t.

Endings are harder now. My husband seldom watched late-night TV, but when I heard the news my thoughts ran straight to grief: “No! Dave was always on. He was on when my husband was alive. And now they’ll both be gone …”

The retirement of David Letterman and the death of my husband aren’t connected. I know that.

My moving-on-yet-still-grieving brain says otherwise.

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On a different TV note, I’m definitely avoiding Rachael Ray’s “5 More Recipes to Make Before You Die“ segment scheduled to air this same day. I usually enjoy her show, so I’ll give you the link to the promo clip that alerted me:

When you’re missing someone who died, you don’t want to hear that food is “to die for” or be told your life will be incomplete if you don’t make a particular meal “before you die.” Such phrases highlight the absence of the deceased, who will never have the chance to taste these decadent dishes because their too-short lifetimes were incomplete.

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While I’m harping about food and grief, I’ve bitten my tongue (for over a year) about a snack I saw at the Winter Park Art Festival in 2014. The deep-fried potato crisps were covered in bacon, cheese, and — who knows what else? It looked delicious, but they called it something they probably meant to be cutesy: “Heart Attack on a Plate.”

I was with another widow at the time, a woman whose husband died of a heart attack.

Not cool, marketing department. Not cool at all.

05/10/2015

Mourning on Mother’s Day

Mother’s Day hurts. I don’t like dwelling on the downside of death (although that may seem like a strange thing from someone who writes about grief), but the best way for me to get through every second Sunday in May is to close the blinds and hunker down in solitude.

Sometimes the light of love (and its loss) shines brighter against the darkness of grief.

Sometimes the light of love (and its loss) shines brighter against the darkness of grief.

It wasn’t always like that. As a kid I picked flowers, drew cards, and poured adulation on Mom. As a young adult, then a new bride, and eventually a mother myself I appreciated her (and my grandmas and aunts) more deeply than before. My cards and gestures of appreciation (which once seemed so grand) paled next to Mom’s lifetime of service — though my daughters’ creative endeavors for me melted my heart.

After Mom died, Mother’s Day went dark. I still went to church that day, but mostly for my children’s sakes. (I wanted them to see me attending weekly even if I didn’t feel like it, and I knew they and their peers had practiced a song for all the moms.) I enjoyed their lovely hugs (and songs) and cards and “interesting” breakfasts in bed that one day of the year.

But the moment memories of Mom meandered into the day, renewed mourning overtook me.

Over the years I’ve learned to live with my mother’s loss, but there were always certain days per year — like Mother’s Day — wherein the pain of being a daughter without a mother hit me again. Hard.

Those hits became all-out assaults after my husband died. The pain of being a wife without a husband knocked the breath out of me.

This is my fifth widowed Mother’s Day. It’s easier … and yet it’s not. (My plastic smile will be a little more convincing as I smile at the children singing at church this year, but I know better than to bother wearing eye makeup.)

If you know someone grieving this Mother’s Day, let them know you’re mindful of their loss. Let them know you’re thinking about them. Let them know you know this year is different than it was.

Don’t say you know how they feel, because you don’t — especially if you’ve never suffered a similar loss. Only bereaved mothers, for instance, can nearly understand the raw feelings of other mothers who have buried a child. Acknowledge the unique, personal, presence of their grief.

Some people need interaction with others to distract them from tender days like this. Reach out and invite them!

But if they ignore or decline your invitation or phone calls, don’t take it personally. They might be like I am, needing to hunker down this year, but also appreciating messages of support. (I’m keeping the “Please do NOT disturb” sign on my door all day.)

Whether they take you up on your offers or don’t bother responding, let them know you’re aware and you care.