loss

10/13/2015

Breast cancer awareness and grief–when seeing pink means seeing red, part 1

This is the first post of several breast cancer awareness experiences to keep in mind during October’s breast cancer awareness month … and beyond.

Last month marked twenty years* since Mom died of breast cancer. More than thirty years ago her mother passed of the same; so did hers.

I’m therefore acutely aware of the importance of women getting regular mammograms and being vigilant about self-exams. That’s how Mom won more than three extra years with our family.

That’s why I got a mammogram — on the twentieth anniversary of Mom’s death, the week after the fifth anniversary of my husband’s.

The fun of getting a mammogram starts with stuffing top wear into a locked cubby. Photo by Teresa TL Bruce

The fun of getting a mammogram starts with stuffing top wear into a locked cubby. Photo by Teresa TL Bruce

It’s not something I look forward to every year. (Does anyone?) This year I put it off for months, until one day I finally called and made an appointment for the first available opening.

The irony of the timing didn’t hit me until that morning.

By the time I’d sat in the backed-up waiting room an hour after my scheduled appointment, my emotions were all ajumble.

By the second time the technician told me the equipment had a “technical problem” — and the procedure had to be repeated — my pertinent body parts felt all ajumble, too.

I cried — as much from emotional pain as from physical. When the technician assured me (bless her heart) that it would “only hurt for a few more seconds” (for the record, not true), she had no way to know the far deeper, longer-lasting pain came not from the contortions she inflicted on my body but from the losses the date itself smashed against my chest.

For a few moments, I plunged back into the mode of blurting my bereavement the same way I did during the early weeks (months, really) after my husband’s death.

To her credit, the woman tried to comfort me. She put an arm around me to give me a hug — but clad as I was only in the radiology center’s flimsy wraparound top, it felt awkward and uncomfortable. (In an oddly different way, the feeling reminded me how it felt when I was newly widowed and well-meaning men friends offered hugs — which at that raw time I didn’t want from any man I wasn’t related to.)

After the second round of images was taken (this time without technical difficulties), as my hand touched the doorknob, she offered a few well-intended words:  “You’ll be okay. You just have to get past it. Everybody has to die sometime.”

WHAT!?

I’d just bared my soul (among other things) in front of this woman. I was crying because I missed my mom on the anniversary of her death to breast cancer, and missing my late husband, too. And she tried to make me feel better by reducing the validity of my grief? (Not to mention that she ignored my apprehension over the reason for the mammogram she’d just subjected me to.)

Yes, I saw red.

Please don’t say such things to those who are grieving! It’s true that everyone dies, but it’s not helpful or encouraging (or even nice) to make such losses seem everyday or expected or unimportant. 

___

*In an earlier post I rounded up the amount of time (see https://tealashes.com/2014/06/27/comfort-after-moms-funeral/).

09/11/2015

Remembering 9/11 can help you understand the bereaved

On September 11, 2001, life in the United States skidded to a stop when nearly 3,000 people perished because of terrorist attacks. If you were the age of a young school child or older, you remember the moment you heard the news.

Dismay.

Shock.

Denial.

Distress.

Panic.

Fury.

It was a few minutes after 9:00 a.m. when the phone rang. My friend’s voice was clipped. “Are you watching TV?”

My husband was sound asleep after his night shift. I’d taken our younger children to elementary school. Back at home I folded laundry while our oldest daughter painted on canvas. Soon we’d delve into the academic part of her seventh grade curriculum. My friend knew I homeschooled during the day, so it was odd she’d call, let alone assume the TV might be on during school hours. “No. Why?”

“Turn it on.”

“To what?”

“Anything. Any channel.”

Dismay. Shock. Denial. Distress. Panic. Fury.

I cried for those whose lives were lost. I cried harder for the loved ones who lost them.

It was a huge thing. A devastation.

A travesty. An assault.

A violation.

In the days that followed, the attacks were all anyone talked about — even when mentioning the heroics of the many, many selfless souls who stepped into the fray to help others.

None of us knew then the long-term impact of that day’s events. First responders from New York City’s police and fire departments, and others, continued losing life and health in the aftermath of the initial casualties.

(Casualties. What a calloused, indifferent word — as if any of those killed or maimed or bereaved came to that definition by casual, effortless chance.)

Families were shattered by death, disability, and despair. Businesses and livelihoods were lost along with the lives they’d once supported.

For those of us living far away, not personally knowing victims or their families, and not having our everyday routines disrupted beyond that first day’s screeching halt, we felt for them and we cried with them and we sacrificed and contributed for them. But our everyday life, for the most part, went on.

The impact of 9/11 changed us all, some more than others. Global news coverage and the scale of the tragedy made it difficult to ignore, and visible memorials and annual commemorations ensure we will never forget.

For those whose loved ones were lost, the personal impact of 9/11 is impossible to forget. Visual reminders of their absent loved ones are everywhere they look. Annual commemorations extend beyond Patriot Day on September 11 to include every holiday, birthday, anniversary, and seasonal tradition.

A decade and a half later, mourning survivors I’ve met since have “moved forward” with their lives. I won’t diminish their losses by claiming they “resumed” life in the same manner as those of us who were not personally impacted. Life, as it was Before, ended that day. Life, as they eventually learned how to live again, evolved slowly in the After.

Of course, other people died that day, too. People all around the world. One was Karl, a sweet, elderly man in my congregation at church. His death received no national fanfare. No acclaim. His kindly widow’s loss was overshadowed by the quantity of publicized loss, but Ruth’s private grief was just as real.

At the time I felt badly for her. I admired her courage and strength as she tearfully expressed her beautiful belief that her husband was needed in heaven to help soothe and greet the many souls who’d been taken from mortality that day. I prayed for her, and I told her I was praying for her, and I sent notes once in a while.

But I was clueless. I had no idea of what her loss meant to her. How could I? That was a decade before I shared the designation of widow. A decade before new bereavement taught me the private manifestations of receiving the news that another loved one was dead.

Dismay. Shock. Denial. Distress. Panic. Fury.

In the months that followed my husband’s death, coping with that was all I could think about, even though there were many selfless souls who reached out to me in compassionate gestures. But their everyday lives went on.

Now, whenever our nation pauses for a moment of silence to honor the victims and heroes of 9/11, my understanding of what they experienced remains fractional, but I am more aware than I was. I will never be able to fully understand what any of them endured. But I do know how I felt in my own dismay-shock-denial-distress-panic-fury grieving. And my empathy for them has grown.

(Ruth, I don’t know where you live now, but please know I think of you and Karl today, as I think of the thousands of others for whom September 11 has such significance.)

I remember.

08/12/2015

Are We There Yet? (How Long Does Grieving Take?)

“Are we there yet?“ — one of the most annoying questions parents hear. Invariably, no matter how long remained was too long for our children. When they were young,  we sometimes answered that if they asked one more time, we’d turn the car around and go back home.

clock with fallen numbers

“who cares?” clock face created and photographed by Teresa TL Bruce (TealAshes.com)

On a few occasions, we circled back to where we started, postponing the excursion for another day.

Their petition came regardless of our destination — rare, days-long, out-of-state road trips; frequent, up-to-an-hour-long, crosstown errands; or thrice-weekly, around-the-corner church meetings . All drives were apt to include variations on the dreaded question.

In hindsight, I realize our kids were eager for the fun to begin (or at least for the end of being strapped into car seats and belts while motion sickness churned their tummies). But while we were behind the wheel, our focus was to convey everyone safely from point A to point B. (If I could manage not getting lost when I was driving — ha! — so much the better.*)

Maybe asking “When will we get there?“ reflected part of our kids’ intellectual development, too. They were still learning the basics of how time flows and is measured. They were learning to anticipate upcoming landmarks on familiar routes and weren’t yet able to estimate the amount of time it would take to reach the next location they could relate to during their journey.

And at that point in their lives, they lacked the experience to realize (or in some cases to care) how annoying it was to be asked.

We were more worried about reaching our destination intact than in time. If the Bruces were late, we were late … as long as we didn’t become the late Bruces in our attempt to arrive.

Sometimes detours or road conditions made our best estimates to “How long is it gonna take?“ woefully wrong. (And, oh, did we hear about it!)

Then life’s day-to-day travels crashed into the worst kind of unplanned detour. My husband died.

My estimated arrival times died with him.

“Are you better yet?“ — one of the most annoying questions mourners hear. With precious and dear exceptions, no matter how recent my bereavement felt, it seemed to take too long for those around me. When my grief was still young, I first answered bluntly, “No, of course not.”

If the same person asked more than once, I soon learned my frank answers disappointed them; disapproval showed in their expressions, voices, and words. I turned myself around when I saw them (or their phone numbers). That I was “still” not “better” (meaning not yet my former, pre-widowed self again) shamed me into silence about my real feelings. (Grieving was hard enough without being made to feel I was doing it the wrong way.) I put on my plastic smile and said, “Mm-hmm” — and got away from them as fast as I could.

In hindsight, I realize my friends were still learning the basics of what it meant to be around someone who’d lost a loved one. And they were eager for my sadness to end (as evidenced when I cried my way through conversations). But while I fumbled my  way through learning to cope with life-altering loss, my focus was simply to endure a single day from one moment to the next.

Any planning, any  estimation, any sense of the “when” of things was beyond my capacity. Death detoured my timing in every way. It slowed me down. (I know others who fell into fast-paced flurries of keep-busy actions to try to keep their grief from catching up with them; it sometimes worked — temporarily.)

It took me twice as long to do the dishes (when I remembered to cook — or to eat — and the two didn’t necessarily happen together anymore). It took me twice as long (or more) to get dressed in the morning. Four times as long to pay the bills and attend necessary business transactions. And getting to sleep or staying asleep … (sigh). Let’s just say my internal sleep clock has been at the repair shop for several years now …

I had a trouble estimating how I’d fare on the other side of the next five or ten minutes. Figuring out what would happen another day was tougher. What would the next week hold? (Thinking that far ahead made my head hurt almost as much as my heart.) The following month? Ha! (In case the italicized “Ha” with an exclamation point didn’t convey it clearly the first time, let me repeat. Ha!)

Questions about my five- or ten-year plans were as impossible to answer as “When are you going to act like normal again?“

Maybe asking “When will you be done with grieving?“ reflected part of my acquaintances’ empathetic development. They were still learning the basics of how grief flowed and ebbed around time-warped detours on an unfamiliar journey they couldn’t relate to. Yet because of what they observed in how I grieved my husband, they were awakened to an uncomfortable realization: they would someday lose a loved one, too.

Their need to ask, “So, is everything okay now?“ stemmed as much from their lack of experience with grieving as it did from their genuine concern for me. And at that point in their lives, they had no way to realize how annoying it was to be asked. 

Instead of asking your grieving friends how long it will take them to “get over” their bereavement, assure them you accept them and support them no matter where (and when) they are in their grief.

___

*I’ve been known to get lost even when following GPS directions. In a future post I’ll share more about getting lost in other ways while finding my way through grief.

___

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07/24/2015

Anniversary after Death

Anniversaries are different after a loved one’s death. And there are more of them than there were before.

My first wedding anniversary after my husband died was/would have been our 25th. (Note my confused tense. Since he was gone, did I still count each new year as an anniversary? Or did the numbers freeze at 24, the last we spent together?)

Ten months into widowhood, I was “still” in shock. I remember only two things about my first widowed wedding anniversary:

  1. It hurt too much for “happy anniversary” greetings to be welcome.
  2. It hurt worse not having it acknowledged at all.

The kindest contacts let me know they were thinking of me — and of my loss. I read my friends’ support in texts, emails, Facebook messages, handwritten notes, and cards. Others left phone messages I heard later (because I didn’t feel inclined to answering the phone that day).

If you’re wondering whether (or how) to mention your friends’ wedding anniversaries after they’ve lost their spouses, here are some tips:

  • Say something before the anniversary if you can. For many bereaved, the days leading up to are as hard as (if not harder than) the day of. Even a belated acknowledgment is better than none.
  • Avoid cheery, cliché greeting-card greetings.
    Don’t say, “Happy Anniversary” as if this year is no different (even though you do wish them happiness).
    Don’t say, “Have a wonderful anniversary” (because without their beloved spouse that’s not likely).
  • Acknowledge the loss. Anniversaries after death are inextricably interwoven with that loss. Phrases like these are helpful:
    • “I’m thinking of you as your anniversary approaches.”
    • “You’re on my mind this week. I know this anniversary will be different.”
    •  “I know you’re missing your sweetheart.”
    • “You’re in my thoughts and prayers.”

At the start of the post, I mentioned there are more anniversaries after a death than there were before. Death marks a family’s calendar with its own darkly circled dates.

All the “typical” commemorations are there — holidays and birthdays and, yes, wedding anniversaries.

But for anyone who has lost a loved one (parent, child, spouse, sibling, best friend …) the death-added days are there, too — the death date, the funeral date, the day the death certificate finally arrived, the day the cemetery marker was installed, and (in cases where death was expected due to illness) the dates of first symptoms, first diagnosis, hospice care, etc.  All are anniversaries of their own sorts.

Even when death was expected (and perhaps welcomed) at the end of a long, productive life (ultimately impeded by a painful, protracted illness), such “sadiversaries” or “angelversaries” carry pain for the survivors as much as they bring remembered relief for the release of the sufferers.

(A quick side note here: As “happy” as I was for my 54-year-old mother’s release from the cancer that entrapped her body, and as “grateful” as I was that my 47-year-old husband was no longer imprisoned by the premature deterioration of his mind, I was — and still am — neither happy nor grateful that either of them died so young. I’d have much preferred decades more together. So, please. Please don’t tell me — or anyone mourning — why we should be glad or thankful for our loved ones’ deaths. Grieving is not compatible with Pollyanna’s “glad game.”)

I’d say all such dates are difficult to get through during the first year, but that would do a disservice to everyone who has lost someone close to them. Love has no time limits. Neither does grief. I mentioned not remembering much about my first widowed anniversary, but I don’t remember the second one, either. The shock of widowed fog (and other grief) can — and often does — blur more than a single year’s worth of seasons. 

We will always mourn those we’ve loved, but we won’t always be consumed by that bereavement. Given time and encouragement, we learn to live with the grief. We learn to live in spite of it. We learn to live forward again.

But as anniversaries approach — even years later — we can always use expressions of loving help and caring encouragement from our friends.

"The language of love is expressed in countless caring ways."

Snapshot taken by Mom, tucked in a Hallmark card from my late husband. Teresa TL Bruce, TealAshes.com

 

 

 

 

07/16/2015

Putting the Widowed in a Box

I went for a checkup yesterday. I hadn’t been to that provider since the year my husband died, so I had to fill out a new medical history. How difficult filling out such forms used to be (and sometimes “still” is)! If you own or manage a business that requires personal information of its clients, make sure your paperwork and/or website includes “widowed” as a category.

At least this form offered me the option of "Other" where I could write in my own category: widowed.

At least this form offered me the option of “Other” where I could write in my own category: widowed.

I can’t count the number of times I sobbed through inadequate, limited options during the first year and a half after his death. (I do remember specific waiting rooms where people were leery enough of the crying woman to move to the other side of the room, sending not-so-furtive glances my way.)

When I was newly widowed,  EVERYTHING reminded me of my loss. It was hard enough coping with grief on a daily (sometimes hourly) basis. I hated having to acknowledge my husband’s death in clinical black and white on the many forms I had to fill out — and there were a LOT of forms. It was excruciating to complete paperwork that ignored the existence of my life-altered status.

  • I was not “single.” (I’d been married for 24 years and hadn’t done anything that changed or negated that. Neither had my husband — except for his dying.)
  • I was not “divorced.” (See above.)
  • I was not “married.” (Even though both of the above still applied, my spouse was no longer there — he was NEVER coming home.)
  • I was “widowed.” (Still am.)

Too often, company  (and government) forms offer no appropriate box for widows and widowers to check under “marital status.” On paper I write in my own category, even when there isn’t an option (or enough space) to do so. But online forms can incite scream-inducing, option-lacking frustration.

(And yes, during that first year or so, I sat at my computer and screamed at such websites — and at whatever offices or organizations had sent me to them — even though I had never been a person who screamed. But I’d never been widowed before, either.)

It has been nearly five years since my husband died. Socially, I’ve come to see myself as single again — most days, anyway.  But legally, “widowed” still feels like a better fit.

I still check the “Mrs.” box (rather than the ones for Ms. or Miss).* Online, that often opens a dialog box for my husband’s contact information. (Good luck trying to reach him, I think.) If I leave blank his current address and phone number, or type “deceased” (or, when I’m in a snarky mood, if I enter the word “cemetery”), such sites red-line my responses with please submit a valid phone number and street address. (Sometimes that makes me want to scream again.)

I don’t appreciate paperwork forcing me back to the start, forcing me to redefine myself according to its guidelines.

As a widow, I’ve had to do enough starting over — and redefining — for myself.

___

*If you don’t know what a widow prefers to be called (Mrs., Ms. or Miss), ask her. She won’t bite, and she’ll appreciate that you respect her enough to want to heed her preference.