help

04/23/2014

Never Tell Mourners You Know How They Feel

Yesterday I heard the umpteen-hundredth expression of “I know what you’re going through.” I felt as angry this time as I have every time well-meaning people sympathized with the same sentiment over the last three and a half years. Equally infuriating is hearing “I know exactly how you feel.”

stop telling mourners you know how they feel, grief, teal scarf, hand stop, orange tree, TealAshes.com

Stop telling mourners you know how they feel — even if you think you do. (photo of and by Teresa TL Bruce, TealAshes.com)

No, you don’t.

I’ve attempted civility by biting my tongue. (Yesterday I bit my lips together, too.) When in person, I’ve tried to neutralize my facial expression and body language, and over the phone I’ve modulated my voice with care. Grief (and repeated experience over and over and over) can inspire Academy Award-worthy performances, I’ve learned.

Inside my head, though, each time someone tells me they “know” how I feel, my honest response is more visceral than a simple “No, you don’t.” Fight-or-flight takes over. My heart hammers as claws and fangs extend, my legs tense as if readying to spring, and my mouth screams, snarls, and spits the red-inked, italicized, underlined, highlighted, bold-faced, all caps reply: NO! YOU. DON’T. KNOW!

Even at my most feral moments, I acknowledge that most of those who say such things are trying to relate their pain to mine. They want to empathize, which is a good thing. Their claims, however, do the opposite. Asserting their acquaintanceship with my deeply personal pain and my struggles through grieving minimizes the unique nature of my loss, and minimizing a mourner’s experience is never a good thing. Never. Not ever.

Every relationship is unique, so no two losses are the same. When a person loses a loved one, that loss colors every aspect of life. It creates irrevocable change. It is devastating and overwhelming and pervasive and personal. When I was newly widowed, very few widowers or widows made such a claim to me. Instead, they acknowledged aspects of my loss that they didn’t share. Rather than minimizing my experience by comparison to their own, they validated the multifaceted components of my overturned, grief-ridden world.

Need an example of what offered helpful acknowledgement rather than hurtful comparison? Here are a few:

  • “I can’t imagine what you’re going through. It must be awful that you didn’t have the chance to say goodbye.”
  • “I’m so sorry you’re going through this. I know it isn’t the same, but I know how badly I hurt over my husband’s death.”
  • “I wish I could say something to make it better, but I know my words can’t help. I’m here to listen to you.”
  • “When my husband died we’d already raised our kids and retired. I can’t imagine what this is like for you.”
  • “I lost my [loved one of whatever relationship], but I know it isn’t the same. I’m so sorry.”

As I recalled and wrote the examples above, I thought, “How bleak they sound …” The truth is that in the bleakest of life’s circumstances — the loss of a loved one — the most easily absorbed consolation comes in compassionate yet dispassionate commiseration. There will be time for cheering and lightening in the weeks and months and years to come (so stick around to help provide that in its eventual time), but in the meantime, in the immediacy of the misery of the loss, acknowledging the darkness will help your friend adjust better than stories of how you made it through your own dark times — unless your friend asks for them.

You don’t know what a mourner is going through — even if you think you do. In fact, the same should be said of other sources of trial and bereavement in life. Death isn’t the only cause of grief; a true friend will acknowledge the unique, acute, life-altering nature of the bereaved’s pain.

Michelle L. wrote “You Don’t Know What You Don’t Know“ for the Segullah.org blog on April 17, 2014. While her writing addresses other kinds of life trials facing “broken and struggling families,” her admonitions equally apply to comforting and supporting the bereaved. With her permission to share this, I’m quoting Michelle L.’s main points below, but please visit her post (http://segullah.org/daily-special/you-dont-know-what-you-dont-know/) to see the full text.

  1. If you read nothing else, remember this: extend love; refrain from judgment.
  2. Don’t even talk about taking sides. … When a family is destroyed, there isn’t a side to take.
  3. You don’t know what you don’t know. Don’t make assumptions. 
  4. Offer kindness to those who are broken. The very best words to say: “I’m so sorry you are hurting.”
  5. Avoid trite phrases. 
  6. Your experience doesn’t translate into mine. 
  7. Don’t make assumptions about anyone’s spiritual state. 
  8. Statistics don’t matter. 
  9. Don’t offer advice or chastisement. 
  10. Talk about other subjects. Look beyond the wounds to the whole person. 
03/14/2014

Why My Grieving Friend “Still” Cries–A Walkthrough

Do you worry that a grieving friend or loved one still cries?*

It’s true that time will help, but it takes longer than you expect. Your friend’s 2013 loss is “still” very recent. That she still cries is normal. She’s still stepping through the year of “firsts.” Every season, every holiday, every public (and private) anniversary, birthday, or commemoration has to be re-framed without her loved one’s presence. Some of it may be on a conscious level, but much of it is a visceral adjustment.

Until August I walked with a cane for 10 years after a misstep — a very costly misstep.** (Stay with me, please. You’ll see how this relates to grief by the end.) When I first injured my ankle, it hurt all the time. All. The. Time. When it didn’t keep me from sleeping, pain invaded my dreams and awoke me from them. It wrought tears I didn’t realize I was crying, and it happened as often when at rest as when I tried using it.

I did all the right things — ice (at first, then heat), anti-inflammatory medicine, elevation, and rest. When days brought no improvement, I sought professional treatment. X-rays ruled out fractures and physicians confirmed the appropriateness of what I’d already been doing. I hobbled around in a pressurized walking boot for nearly nine months, but when my ankle emerged from its plastic-and-Velcro womb, I’d delivered only atrophied muscles, tired tendons, and limp ligaments. Months of intensive physical therapies followed, and TEN spinal nerve blocks later … I still needed medication 24/7 to manage the pain.

I can’t remember how many prescriptions doctors had me try before finding one that let me go about my day-to-day mom duties. Some were ineffective or made me so loopy I could scarcely walk down the driveway, much less drive from it. One worked fairly well (for a few weeks) before painting my leg with a red, itchy please-scratch-with-sandpaper rash. Another worked perfectly — I felt almost zero pain and I could drive safely — until the day my hands began shaking and my hair abandoned scalp by every brush- and finger-stroke.

It was between the second and third years after my missed step when I found medicine that relieved enough pain for me to function without involuntary tears — as long as I walked only upon 100 percent flat surfaces and carried nothing as heavy as a full milk jug. Stepping across grass, sidewalks, parking lots, dirt and/or sand, ramps, the slope of my bathtub, and thick carpeting still overrode my damaged ankle badly enough to alter my life every hour of the day — even with the more effective medicine — and the pain still invaded my dreams by nightmares and awakenings.

In the eighth year I tried acupuncture. Friends had recommended it earlier, and I’m not sure why it took so long for me to try it considering all the other methods and approaches I’d embraced. I wasn’t ready until I was ready. After the first treatment I cut the dosage of pain medicine in half. After the third treatment I stopped using it altogether.

That doesn’t mean I no longer felt pain in my ankle — far from it — but I became better able to handle it. Even so, I still had to tread lightly and carefully using my cane over all but the smoothest indoor surfaces — until this 10th year’s miracle allowed me to step freely again.

My grief as a widow has been similar, though the emotional pain was/is/was far worse than the physical. I consulted with experts (other mourners) and sought treatment (with a grief counselor) and I still face many sleep-interrupted nights due to grief. At three and a half years into my healing, I’m still figuring out how to balance my “dosage” of day-to-day living with my adapted way of walking on the uneven surfaces of widowhood.

At less than (or more than) a year since your friend’s loss, she is still adjusting the Velcro straps on her walking boot with every hobbled step she takes. Time will help her toward healing, but she must also maneuver through the emotions and realities along her altered footpath. She’s got a long road ahead as she learns to walk with a new gait. Offer her your arm — and your ear — in patient support, but “still” your tongue about how long it’s taking her.

___

A couple of important notes on this post:

*I adapted this post from my answer to a friend’s query on behalf of a loved one.

**The miracle of how I got rid of my cane is a separate story, one for which I am truly grateful!

02/24/2014

When Will Things Be Back to Normal for My Grieving Friend?

When will life get back to normal for a grieving friend? The short answer is simple: never. It won’t ever be the same.

The long-term answer is more complex. The reality is that when their loved ones died, so did the “old” life they knew. Almost as soon as the funerals end, friends of the bereaved settle back into “normal” routines. For them, “life goes on,” but for the bereaved it does not. (Please see my earlier post: Do NOT Tell the Bereaved “Life Goes On”.)

A couple of month after my husband died, I came across an old copy of a Life Change Index Scale.* It was a chart listing the “points” attributed to various stressful life changes. (Not life pauses or hiccups or bubbles. Changes.) For each pertinent event I’d experienced within a year, I was to add up the associated numerical ratings. At the bottom of the page, the scoring caution went something like this:

  • under 150 meant 30% chance of illness in the near future
  • 150 – 299 meant 50% chance of illness in the near future
  • 300+ meant 80% chance of developing illness in the near future

I actually laughed at my result. My score was over 750.

The reason I bring up this scale is that in every version I’ve seen since, the highest stress point value (100) is attributed to the death of a spouse. The deaths of other close family members are also highly ranked (63). For me, seeing those numbers on a black and white chart validated how off-kilter I felt. The first two words of the title — Life Change — acknowledged the irrevocable shift from my “old normal.”

Eventually, your grieving friends will forge a “new normal” path through life. This will likely take years. Yes, I said years. The minute by hour by day by week by month by year adjustments are huge, and the human mind and body can only handle so much at a time. Be patient with your friend, who probably won’t seem like himself or herself for a long time.

Early in my raw grief, I wondered when I would feel like myself again. Most people who’d been widowed much longer than me assured me that it would happen, but they alerted me not to expect it too soon. At first, I felt despair when they cautioned it took about three years for most of them. Three years?!? I didn’t know if I could make it feeling so horrible for three more days — how could I fathom feeling this way for three years?!?

The first year was difficult beyond description. My mind and body were so overloaded I have huge gaps in my memory. I look back over the things I wrote for myself in journals and in correspondence with other widows and widowers and, until I read my own words, I have no recollection of how I got through some months.

The second year was also brutal. During the second year I no longer felt the numbing effects of “widowed fog.” I’d thought the Year of Firsts was hard as I went through the first of every holiday and family commemoration without my husband. I’d experienced the same every-event renewal of loss the first year after Mom died, too. But during my second year as a widow, I was more aware of the increased responsibilities on my shoulders. I was more aware of how their father’s death impacted our children’s lives. I was beginning to learn to process the emotions I’d tried to ignore for the sake of getting through year one.

For me, the shift into “new normal” clicked into gear a couple of months before the third anniversary of his death. I’d known all along that — eventually — I’d be okay again. My faith had been at the core of that understanding, but it was an ethereal assurance. It took 34 months for me to begin to feel I was actually becoming okay again. That doesn’t mean I no longer dissolve into a puddle of tears from time to time, nor does it mean I don’t miss him anymore. I do both. Sometimes I still slip back into non-functioning hours when mustering the strength to hide in the pages of a good book is my best self-preservation tool. But even as I turn each page, I know when I reach the end of the chapter I’ll be able to step back into my life, my different life.

Please understand this about your grieving friends. They need time. They need your patience. They need your acceptance of how their grief impacts their lives.

I will always be grateful for those who didn’t rush me that I “should” feel or do what they thought appropriate. I will always appreciate those who did not shame me by inflicting “by now” or “already” assumptions upon me. I will always be indebted to them for listening to me without judgement. Please, do the same for your friends who’ve lost someone they love.

___

*One such scale is available at http://www.dartmouth.edu/~eap/library/lifechangestresstest.pdf

02/06/2014

Valentine Greetings for the Grieving

Holidays and other special occasions hurt when you’ve lost someone you love. Valentine’s Day is no exception.

When the love of your life has died, pre-Valentine’s advertising seems cruel. Perfect gift boxes from Jared and kisses beginning with Kay mock survivor’s lonely wedding rings and abandoned lips. Hallmark video vignettes leave tear marks. Plush teddy bears (or lace teddies), chocolate-covered strawberries (or chocolates), intoxicating aromas of roses (or colognes), intimate dinners out (or in) for two … Whatever romantic traditions a couple may have shared, reminders are everywhere that two are now halved into — rather than joined as — one.

Anyone who has lost somebody they love — parents, children, siblings, friends — not just romantic partners, can feel agonizing resurgence of “old” grief around the most heart-oriented part of the year. In my childhood home, Mom made heart-shaped pancakes and colored my milk pink every Valentine’s Day. She died nearly two decades ago, and I still ache for her — as well as for my late husband — every February 14.

For those whose grief began more recently, the already excruciating pain of loss is sharpened by the onslaught of all things about the holiday. Almost as devastating as the loss itself is the sensation of being forgotten, abandoned, or overlooked.

So what can you do to help your friends whose loved one has died? By telling your friends you’re aware of their pain on this holiday (and others!), you’ll alleviate some of that loneliness.

Instead of wishing a grieving widow(er) or other mourner “Happy Valentine’s Day,” express something that better reflects your awareness of the loss. 

Here are some helpful things to say to those suffering any bereavement — not just to those who’ve lost a life partner:

valentine-candy-heart

There’s a piece missing from this candy-filled heart. (photo by Teresa TL Bruce, TealAshes.com)

  • I know this is a difficult Valentine’s Day for you. You are in my thoughts and prayers.
  • You are in my thoughts this Valentine’s Day.
  • Thinking of you this week.
  • Avoid saying “at least,” which diminishes the importance of the loss. Never, ever say it. Your purpose is to acknowledge the source of the grief, not gloss it over or otherwise minimize it.

Gestures are great, too, and they don’t have to be big. If you can’t bring yourself to address the loss directly in words, you can indeed show your concern and awareness — literally, in deeds:

  • invitations to lunch/dinner at your home or a restaurant
  • invitations to do ____ [something!] with you
  • small gifts (a flower, a plant, a candy bar, a funny card … whatever you think may be of interest)
  • completion of a chore (rake the yard, wash the car, walk the dog, shine shoes together, do a load of laundry or dishes …)

Whatever you choose to do for your grieving friends this Valentine’s Day, thank you for doing it. Thank you for acting to comfort their broken hearts on this day honoring love.

___

Please note: I have no relationship of any kind with Hallmark or Jared or Kay jewelers — beyond my deep seasonal aversion to their advertising campaigns (as explained above).

01/28/2014

Do NOT Say These to a Bereaved Parent–or Any Other Mourner

Grieving the death of a loved one defies description. It hurts, disrupts, distracts, eviscerates, overturns, and shatters. When the Reaper removes a dear one from your friend’s life, that life is forever changed–and so is your friend.

Even others who’ve experienced a loss of similar devastation can imagine only a fraction of what your bereaved friend now faces. Every relationship between souls is unique, as is each loss.

Some principles, however, apply to comforting the bereaved in almost all situations. The link below is to a post called “6 Things Never to Say to a Bereaved Parent.” The writer, Angela Miller, tells exactly how some of the most commonly used but least helpful platitudes come across to mourning souls. Regardless of the kind of loss your friend has experienced, please read her article for helpful insights into what NOT to say.

(I’m summarizing her main points below, but please, please see her article in full!)

  1. Do NOT say “Time heals all wounds.”
  2. Do NOT say “Let go … Move on.”
  3. Do NOT say “Have faith.”
  4. Do NOT say “Everything happens for a reason.”
  5. Do NOT say “At least…”
  6. Do NOT say “Be thankful.”

I’ve not experienced the death of a child, so I don’t claim to know that pain. I do know that in each of the losses of my own life, the sentiments Ms. Miller describes are similar to what I felt and to what friends have expressed their feelings to be. (Please, please read her full article.)