DON’T Say This

03/14/2014

Why My Grieving Friend “Still” Cries–A Walkthrough

Do you worry that a grieving friend or loved one still cries?*

It’s true that time will help, but it takes longer than you expect. Your friend’s 2013 loss is “still” very recent. That she still cries is normal. She’s still stepping through the year of “firsts.” Every season, every holiday, every public (and private) anniversary, birthday, or commemoration has to be re-framed without her loved one’s presence. Some of it may be on a conscious level, but much of it is a visceral adjustment.

Until August I walked with a cane for 10 years after a misstep — a very costly misstep.** (Stay with me, please. You’ll see how this relates to grief by the end.) When I first injured my ankle, it hurt all the time. All. The. Time. When it didn’t keep me from sleeping, pain invaded my dreams and awoke me from them. It wrought tears I didn’t realize I was crying, and it happened as often when at rest as when I tried using it.

I did all the right things — ice (at first, then heat), anti-inflammatory medicine, elevation, and rest. When days brought no improvement, I sought professional treatment. X-rays ruled out fractures and physicians confirmed the appropriateness of what I’d already been doing. I hobbled around in a pressurized walking boot for nearly nine months, but when my ankle emerged from its plastic-and-Velcro womb, I’d delivered only atrophied muscles, tired tendons, and limp ligaments. Months of intensive physical therapies followed, and TEN spinal nerve blocks later … I still needed medication 24/7 to manage the pain.

I can’t remember how many prescriptions doctors had me try before finding one that let me go about my day-to-day mom duties. Some were ineffective or made me so loopy I could scarcely walk down the driveway, much less drive from it. One worked fairly well (for a few weeks) before painting my leg with a red, itchy please-scratch-with-sandpaper rash. Another worked perfectly — I felt almost zero pain and I could drive safely — until the day my hands began shaking and my hair abandoned scalp by every brush- and finger-stroke.

It was between the second and third years after my missed step when I found medicine that relieved enough pain for me to function without involuntary tears — as long as I walked only upon 100 percent flat surfaces and carried nothing as heavy as a full milk jug. Stepping across grass, sidewalks, parking lots, dirt and/or sand, ramps, the slope of my bathtub, and thick carpeting still overrode my damaged ankle badly enough to alter my life every hour of the day — even with the more effective medicine — and the pain still invaded my dreams by nightmares and awakenings.

In the eighth year I tried acupuncture. Friends had recommended it earlier, and I’m not sure why it took so long for me to try it considering all the other methods and approaches I’d embraced. I wasn’t ready until I was ready. After the first treatment I cut the dosage of pain medicine in half. After the third treatment I stopped using it altogether.

That doesn’t mean I no longer felt pain in my ankle — far from it — but I became better able to handle it. Even so, I still had to tread lightly and carefully using my cane over all but the smoothest indoor surfaces — until this 10th year’s miracle allowed me to step freely again.

My grief as a widow has been similar, though the emotional pain was/is/was far worse than the physical. I consulted with experts (other mourners) and sought treatment (with a grief counselor) and I still face many sleep-interrupted nights due to grief. At three and a half years into my healing, I’m still figuring out how to balance my “dosage” of day-to-day living with my adapted way of walking on the uneven surfaces of widowhood.

At less than (or more than) a year since your friend’s loss, she is still adjusting the Velcro straps on her walking boot with every hobbled step she takes. Time will help her toward healing, but she must also maneuver through the emotions and realities along her altered footpath. She’s got a long road ahead as she learns to walk with a new gait. Offer her your arm — and your ear — in patient support, but “still” your tongue about how long it’s taking her.

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A couple of important notes on this post:

*I adapted this post from my answer to a friend’s query on behalf of a loved one.

**The miracle of how I got rid of my cane is a separate story, one for which I am truly grateful!

03/09/2014

Why Daylight Savings Time (Still) Gives Me (More) Grief

I don’t know anyone who likes the twice a year body-clock havoc wrought by Daylight Savings Time. I never did — even before my husband’s death.

I thought it would get easier with time, but here I am, not long before the “official” hour to reset my clocks, writing about how much this spring’s time change “still” hurts. This will be my eighth widowed shifting of the digits. I thought I’d be used to it “by now.”

Changing my clocks hurts for two main reasons. The first is as personal to me as my grief is (and let me be clear — all grief is personal). The second applies to bereavement in general.

My husband was a stickler for timepiece accuracy. I am not. He liked having the seconds on the clock line up with “official” time. I prefer clocks set at least three minutes early to nudge myself toward being on time. Our first Daylight Savings Time weekend as newlyweds brought confusion — and comedy — as we both set and reset our few shared timepieces. As the number of clocks in our household grew over the next 24 years, so did our semi-annual scramble to set them according to his time or mine. It became a twice-yearly game (except when we lived in sensible, non-DST Arizona), and it was a fun prelude to the discomfort of adjusting our sleep-wake cycles.

The first time I changed our clocks by myself after he died felt wrong. It felt like cheating on our game. I couldn’t bring myself to change them all. How I wanted to walk into each room and find that room’s clock set to exactly the right time!

It felt just as improper the following spring — and the fall after, and the spring and fall after that. It felt equally wrong last spring and fall. It still feels awful.

Tonight’s anticipation of Daylight Savings Time brings me to the second, more general reason why DST and Standard Time changes make “the grief monster” more fierce.

When grief is new, every event that marks the passage of time — including the semi-annual time change — lands like a portcullis between life Before and life After the loved one’s death. Each event is a mile marker documenting the ever-increasing distance separating one soul from another.

With time markers such as holidays, birthdays, and anniversaries of all sorts, there are usually emotional histories and future plans connecting them. They each carry a particular pain of their own. But the regular shift from Standard to Daylight Savings Time happens year after year after year … just because legislators decided it should.

For those less new to their grief, it’s true that time will help it become less raw, but don’t try to tell them that unless they ask. Instead, listen to them. “In time” their grief will become seasoned. “With time” their grief will soften. “Over time” their grief can heal–but only in the way a deep, lacerating cut can heal — with a big, permanent scar. “Recovering” from bereavement doesn’t mean the bereaved will ever be able to turn back time to life Before, but it does mean they’ll someday be able to “spring forward.”

“Springing” may be a bit much. Reassure your mourning friends they’ll eventually move forward when they’re ready. Meanwhile, even “inching forward” shows progress.

03/04/2014

How to Filter What You Say for Others’ Comfort

The ones at the center of the ring of loss/grief/suffering can dump whatever they want into outer rings. Those outside the core may dump into larger rings, but ONLY COMFORT goes from an outer to an inner ring.

Ring Theory of Kvetching, Illustration by Wes Bausmith

When you’re upset over the death of someone dear to you and dear to others around you, it can be difficult to filter what you say to whom. A little over a week ago, a reader on another blog* shared this illustration of “Comfort IN, Dump OUT” as expressed by Susan Silk and Barry Goldman in the Los Angeles Times post “How not to say the wrong thing.”  (Please read the full article at http://articles.latimes.com/2013/apr/07/opinion/la-oe-0407-silk-ring-theory-20130407)

The concept is simple. The center of the “Ring of Kvetching” is the person to whom the bereavement, illness, crisis, or other distress belongs — the patient, the dying, the widow(er), the orphaned, the laid-off, the divorced, the ripped-off, etc. People affected in peripheral ways — immediate family, extended family, closest friends, other friends, neighbors, coworkers, etc.–are in the outer rings.

Quoting the post by Silk and Goldman:

“When you are talking to a person in a ring smaller than yours, someone closer to the center of the crisis, the goal is to help. Listening is often more helpful than talking. But if you’re going to open your mouth, ask yourself if what you are about to say is likely to provide comfort and support. If it isn’t, don’t say it. Don’t, for example, give advice. People who are suffering from trauma don’t need advice. They need comfort and support. So say, ‘I’m sorry’ or ‘This must really be hard for you’ or ‘Can I bring you a pot roast?’ Don’t say, ‘You should hear what happened to me’ or ‘Here’s what I would do if I were you.’ And don’t say, ‘This is really bringing me down.'”

If everyone applied such a “comfort IN, dump OUT” filter, it would be much easier to support one another through all kinds of grief, not just due to the death of a loved one but to other losses as well.

It can be tough to see which ring is closer to the center than your own.

It can be tough to see which ring is closer to the center than your own.

Within grieving families, though, it isn’t always easy to figure out — or remember — whose pain is at the center of the rings. Families are filled with primary relationships that could all be seen as the innermost rings:

  • spouse — spouse
  • parent — child
  • sibling — sibling

Also important are these other familial relationships:

  • grandparents — grandchildren
  • aunts/uncles — nieces/nephews
  • cousins
  • godparents
  • “like family” or “family by choice” friends

Loss is loss. If you’re in the inner rings, try to remember that those closest to you and your departed loved one are also hurting. Be gentle with each other’s feelings. Try to think before you speak, especially in response to comments that seem hurtful or insensitive to your own loss. If you’re not sure whether the person you’re about to unload on is in a broader, more “distant” ring than you, err on the side of caution, offering only your condolences and willingness to listen.

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*Many thanks to Ana of the Nine+Kids for sharing the Los Angeles Times story and graphic in her comment on my guest blog post at The Sister, the Beast, and the Invitation to Love

02/24/2014

When Will Things Be Back to Normal for My Grieving Friend?

When will life get back to normal for a grieving friend? The short answer is simple: never. It won’t ever be the same.

The long-term answer is more complex. The reality is that when their loved ones died, so did the “old” life they knew. Almost as soon as the funerals end, friends of the bereaved settle back into “normal” routines. For them, “life goes on,” but for the bereaved it does not. (Please see my earlier post: Do NOT Tell the Bereaved “Life Goes On”.)

A couple of month after my husband died, I came across an old copy of a Life Change Index Scale.* It was a chart listing the “points” attributed to various stressful life changes. (Not life pauses or hiccups or bubbles. Changes.) For each pertinent event I’d experienced within a year, I was to add up the associated numerical ratings. At the bottom of the page, the scoring caution went something like this:

  • under 150 meant 30% chance of illness in the near future
  • 150 – 299 meant 50% chance of illness in the near future
  • 300+ meant 80% chance of developing illness in the near future

I actually laughed at my result. My score was over 750.

The reason I bring up this scale is that in every version I’ve seen since, the highest stress point value (100) is attributed to the death of a spouse. The deaths of other close family members are also highly ranked (63). For me, seeing those numbers on a black and white chart validated how off-kilter I felt. The first two words of the title — Life Change — acknowledged the irrevocable shift from my “old normal.”

Eventually, your grieving friends will forge a “new normal” path through life. This will likely take years. Yes, I said years. The minute by hour by day by week by month by year adjustments are huge, and the human mind and body can only handle so much at a time. Be patient with your friend, who probably won’t seem like himself or herself for a long time.

Early in my raw grief, I wondered when I would feel like myself again. Most people who’d been widowed much longer than me assured me that it would happen, but they alerted me not to expect it too soon. At first, I felt despair when they cautioned it took about three years for most of them. Three years?!? I didn’t know if I could make it feeling so horrible for three more days — how could I fathom feeling this way for three years?!?

The first year was difficult beyond description. My mind and body were so overloaded I have huge gaps in my memory. I look back over the things I wrote for myself in journals and in correspondence with other widows and widowers and, until I read my own words, I have no recollection of how I got through some months.

The second year was also brutal. During the second year I no longer felt the numbing effects of “widowed fog.” I’d thought the Year of Firsts was hard as I went through the first of every holiday and family commemoration without my husband. I’d experienced the same every-event renewal of loss the first year after Mom died, too. But during my second year as a widow, I was more aware of the increased responsibilities on my shoulders. I was more aware of how their father’s death impacted our children’s lives. I was beginning to learn to process the emotions I’d tried to ignore for the sake of getting through year one.

For me, the shift into “new normal” clicked into gear a couple of months before the third anniversary of his death. I’d known all along that — eventually — I’d be okay again. My faith had been at the core of that understanding, but it was an ethereal assurance. It took 34 months for me to begin to feel I was actually becoming okay again. That doesn’t mean I no longer dissolve into a puddle of tears from time to time, nor does it mean I don’t miss him anymore. I do both. Sometimes I still slip back into non-functioning hours when mustering the strength to hide in the pages of a good book is my best self-preservation tool. But even as I turn each page, I know when I reach the end of the chapter I’ll be able to step back into my life, my different life.

Please understand this about your grieving friends. They need time. They need your patience. They need your acceptance of how their grief impacts their lives.

I will always be grateful for those who didn’t rush me that I “should” feel or do what they thought appropriate. I will always appreciate those who did not shame me by inflicting “by now” or “already” assumptions upon me. I will always be indebted to them for listening to me without judgement. Please, do the same for your friends who’ve lost someone they love.

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*One such scale is available at http://www.dartmouth.edu/~eap/library/lifechangestresstest.pdf

02/20/2014 Link

Supporting Those Who Are Grieving–Video Clip

Julianna Sellers, a friend from one of my widow and widower support groups, created this five-minute video called “Supporting Those Who Are Grieving.” She answers the questions of what to say when you go to a funeral and what to say and do when you know someone who has lost a loved one. She also provides examples of what the grieving process is like. If you haven’t been through such a loss yourself, you’ll be especially surprised about what happens “after the one-year mark.”

In preparing this project, she researched many sites with similar themes, including this one (Thanks for the TealAshes.com mention, Julianna!) and Megan Devine’s refugeingrief.com (also referenced in the clip). Additionally, Julianna compiled the responses from an informal poll of the 1300+ members of our “W/W” group of all ages from around the world.

There are brief religious references in the clip, but all the suggestions she offers apply universally to the bereaved (and to those of you wishing to help grieving friends) regardless of religious affiliation or outlook.

If you know someone who has lost a loved one, please listen to what Julianna has to say.

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To learn more about Julianna, visit her blog at http://chaostamingmomma.com/.