what NOT to say

01/14/2016

Grief Therapy and a Friend’s Counsel

A  few weeks after my husband’s death, a woman I hadn’t seen in years suggested I meet with a grief therapist. “My mom went to counseling after her husband died,” my friend told me, “and it made a world of difference for her. Counseling helped her cope.”

My friend’s sincere concern (and attempted consolation) touched me. I felt the kindness of her intention, but her words scraped at already raw emotions. I balked.

I may have nodded as she spoke, but I stepped back, putting a wider space between us while my inner voice screamed over her advice:

I don’t need a therapist, thank you very much, and this sadness isn’t something I need to fix. I don’t want counseling — I want my husband back. I want my kids’ father back! How dare you — who still have your husband — tell me someone can fix my mental health? He’s only been dead a month — am I supposed to be okay with that?

My husband was dead. Talking it out with a stranger wouldn’t return him to life. It wouldn’t return me from my new, unwelcome status as a single parent to my familiar role as a married, stay-at-home mom.

But before I could put words to that inner indignation, another old acquaintance approached who’d not yet heard THE news. “Hi, Teresa. How’s your husband doing? Where is he today?”

I opened my mouth to answer, not knowing what I’d say.

Sometimes, back then, when grief was new and raw and all-consuming, I couldn’t allow myself to utter the horrible words, “He’s dead.”

Other times, I couldn’t stop myself from blurting, “My husband died.” (Looking back, I pity the poor store clerks, fellow shoppers, and service professionals I encountered.)

So how did I answer the second woman’s innocent, caring question that day — on the heels of hearing another’s advice?

A wordless sob.  I spun and — sobbing louder — ran as fast as I could.*

I ran from the idea of counseling as much as I ran from the need to escape before really making a scene.

For more than a year after that day, my friend’s suggestion rattled around in the back of my mind, usually associated with feelings of flight. Meanwhile, I met and networked with many, many fellow widows and widowers and began networking with others who’d lost loved ones as well. From time to time, these peers mentioned grief counseling, and how glad they were they’d participated.  I always thought, “Good for them … but not for me.”

Counseling reframes grief, but it doesn't remove it.

Counseling reframes grief, but it doesn’t remove it. (Photo by Teresa TL Bruce, TealAshes.com)

Yet my friend’s words echoed: Counseling helped her cope … Counseling helped her … Counseling helped …

When I was ready, I realized it might do me some good. Even then, it took a couple of months more (and several dialed hang ups) to schedule myself an appointment.

It did help. It didn’t take away or diminish my loss, but it empowered me with tools to reframe my life’s “new normal.”

(Thank you again, my friend, for the gentle suggestion you gave me that day more than five years ago. I remain grateful for it!)

Before you gently suggest grief counseling or therapy for bereaved friends, keep in mind:

  • Grieving is harder than it looks, so avoid criticism or commentary that implies your friends are mourning and/or coping the “wrong” way. (Of course, if they are doing or about to do something harmful to themselves or others, stepping in is essential — just as it would be for any of your friends who aren’t grieving!)
  • Grieving takes much, much longer than you think. (Hint: Year two is often more difficult than the first 365 days after a death.) Please, remember they are still in mourning long after the funeral — and reach out to them.
  • Sometimes it helps to enlist a professional, but until mourners are ready, counseling won’t help.**  If you think it would benefit your friends, gently mention the idea once. Wait a couple of months before you bring it up again. Then wait another couple of months.
  • Remember: Grief is an emotional state born of love and triggered by loss, but it has real, physical components, too. Grief can’t be cured or fixed or treated any more than you can cure or fix the love at its roots. But coping tools can (eventually) assist in adjusting to it.
  • Like anything new, it takes time to become proficient. Never, ever, ever imply to a griever they should be (or get) “over it by now.” Don’t say that. Ever. No, never. (Can you tell how strongly I feel about this?)

In the meantime, let your friends know that whether or not they seek a professional’s help in learning to manage their grief, you’ll stand by them — no matter what.

___

*I ran as fast as a woman with nerve damage in her ankle could “run” away while clomping along with a cane. (But that’s a whole different story of life back then…)

**See the Mayo Clinic’s page on Complicated Grief for information on warning signs that your friend may need professional help adjusting after a loss. The symptoms listed are normal for grievers (and even to be expected) during the first six months, according to that website, but may also last much longer. However, if they do not diminish of if they intensify over time, enlisting professional help may be necessary.

01/07/2016

Forget about the “Stages of Grief,” but Remember the “Symptoms”

As a writer and editor of both fiction and nonfiction (and as a widow who has networked with thousands of other bereaved individuals) I cheered — and jeered — over one trade article’s treatment of grief.

I applaud Danny Manus for writing “Notes from the Margin: Five Stages of Grief for Your Character,” in which he urges fellow writers to infuse their characters with “fully fleshed out” emotional reactions by having “them go through the Five Stages of Grief.” Too many writers (and friends of the bereaved) appear unaware of the the life-altering impact of loss (whether that loss relates to health, relationships, employment, or other serious changes — including, of course, death).

Manus’s article and attached illustration might provide an initial working framework, but as one among many grief-related writers, I must disagree with the shape of the ribbon as well as the opening lines of the article!

The true

Although the loops acknowledge there are turns along the way to “recovering” from grief’s impediment, I disagree with the shape and “stages” of this image linked with Manus’s article at http://www.scriptmag.com/features/five-stages-of-grief-character.

“When something traumatic happens, it’s said that we all experience the five stages of grief. So as your character goes on their journey – which should be full of trauma, drama, action and emotion – it stands to reason that they should go through the same steps.” – See more at: http://www.scriptmag.com/features/five-stages-of-grief-character#sthash.jNiDqsod.dpuf%5D

I groaned — aloud — as I saw the lovely, neatly looped ribbon illustration and read the words “the five stages” and “the same steps.” 

Not again!

REAL people experience REAL grief in messier, less linear, and far less predictable ways. Every loss is different, because every relationship is unique. Realistic fictional (and nonfictional) characters should be presented accordingly — and living, (barely) breathing, grieving friends should never, ever, ever be pigeonholed into expectations of predictable, orderly patterns of grieving through “stages.”

Elizabeth Kubler-Ross herself explained that her “Five Stages” of grief applied specifically to people’s confrontations with their own impending mortality — and that they did not always line up in this neat little order. As another Elizabeth put it (though regarding the admittedly different topic of pirate laws), “They’re more like guidelines.”

A more accurate “ribbon” would show these “stages” appearing at uneven intervals and with skipped and irregular repetitions. Instead of a loosely looped U shape, the ribbon would be knotted in places, torn and shredded, and positioned in a wobbly spiral like a warped, stretched, squished Slinky.

For me (and for most of those I know who have lost loved ones, the so-called stages look more like the figure on the right:

Grief is messy. The “stages” look more like the figure on the right. (Image found at http://www.ywam-fmi.org/tl_files/ywam-fmi/images/articles/2015/Stages_of_Grief.jpg)

Consider realistically portrayed grieving television characters. Let’s look at the early guest appearances by the divorced Lorna/Lana Gardner (played by Jean Smart) on Frasier and the eight seasons of widowed Adrian Monk (played by Tony Shalhoub) on Monk.

When former high school classmate Lorna/Lana is reintroduced to Frasier, she thought she was already “over” her divorce. She’d “moved on” and was happy with her life — until her ex remarried on her birthday. The writers successfully (and comically) revealed her ups and downs along spirals of “stages” as new life circumstances forced her character to revisit past emotional reactions in her present life. In subsequent episodes, Lorna (by then called Lana) continued to carry her “anger” and “bargaining” stages with her (as parts of her personality that crept in) even as she moved along in her “meaningful life.”

In the series “Monk,” the title character was beautifully, tragically flawed. His lifetime of coping with OCD was thrown into non-coping chaos after his wife’s murder. Even though Adrian Monk managed (with heavy support from understanding though sometimes impatient and exasperated friends) to “return to meaningful life,” that life was always in flux with the “earlier stages.”

When also-widowed Natalie Teeger (played by Traylor Howard) becomes Mr. Monk’s assistant in the third season, her character has “already” returned more fully “to meaningful life” than her employer, yet throughout the remaining seasons there are moments the writers reveal the ongoing impact of grief in its recurring stages. For Adrian, the Slinky of stages remains tightly compressed as he moves forward; for Natalie the Slinky is stretched nearly — but not quite — into a straighter line.

Grieving is messy and complicated and non-linear. If you’re writing about characters whose losses have impacted their “normal” lives, be aware that realistic portrayals reflect the chaos of returning, churning emotions they thought they’d already put in the past.

If you’re supporting friends who’re mourning, please, please, please don’t tell them, “You may be depressed now, but as soon as you go through bargaining you’ll be ready for acceptance and then everything will be okay.” (Trust me on this — I’ve heard it. It doesn’t help, and unless you can bring back the dead, to the recently bereaved that will never be okay.) For many, grieving a loved one is the hardest thing they’ve ever done, and sanitizing it into simple stages implies it should be easier. They will not appreciate you minimizing their emotions.

If you’re grieving a loss of your own, I’m sorry. It hurts. Sometimes all you’ll see are the suffocating scribbles in the “My experience” illustration above. It won’t always be this hard, and in time the dark lines will fade as you work your way forward, but for now, be patient with yourself. Please.

12/23/2015

Merry Christmas Mourning (Death Changes Holidays)

I had a wonderful Christmas this year, the first filled with more joy than sorrow since my husband died in 2010. (Yes, I already had my Christmas celebration, and yes, I know it isn’t yet December 25.)

But last year to a small degree, and the year before more so, and the year before, and the year before, and the awful year before that … (I’m  shuddering now at the painful recollections …) What most stands out is memories not of Christmas mornings but of Christmas mourning.

THIS year I sang Christmas hymns and carols at church without crying. (Okay, I did cry when the choir sang “Let There Be Peace on Earth,” but it was because the music and the message were beautiful, not because I was too emotional with grief to tolerate the familiarity of it.)

THIS year I fell into sleep on our family’s pre-Christmas Eve without tossing and turning. (Most nights I still — five years later — have difficulty getting to sleep without my husband beside me, but this year my kids and I were so on-the-go I was tired enough to leave consciousness behind the moment my head hit the pillow — but I won’t admit to them how late even that was.)

THIS year I read every line of friends’ Christmas letters without grudging envy over their continued co-parenting. (In other years since my husband died, I couldn’t get all the way through. I’ve never considered myself jealous by nature, but reading the happy announcements of what they’d done together hurt too much as I struggled to balance grief and single parenting.)

This was our barely dressed Christmas tree (photo by Teresa TL Bruce).

This was our barely dressed Christmas tree (photo by Teresa TL Bruce).

They say time heals all wounds. In grieving, it certainly helps. But healing takes much longer than most non-grievers think, and “healing” in grief is never fully complete. In A Grief Observed, C.S. Lewis likened his wife’s death to an amputation. The surrounding tissues would stop bleeding and would close up and mend, but there would always be a scar, and “normal” life would never, ever be the same.

Part of what made this year easier for me was the way we deliberately shook up (and also broke up) our Christmas traditions: Instead of putting up a six-foot tree the day after Thanksgiving* (and decorating it with nearly 30 years of memory-rich accumulated, sentimental ornaments), we pulled a factory-lit four-footer from its box (still wearing last year’s also-boxed-up string of red beads, a star, and an angel). We usually enjoy Christmas dinner in the afternoon a few hours after opening presents in the morning; this year we ate our traditional menu one night, but we opened Christmas stockings and presents three mornings later; we sipped night-before-Christmas cocoa at the end of our Christmas day, before my out of state daughters left.

This year Old Doggie Dear's stocking stayed in the Christmas decorations box -- alongside my late husband's stocking. New Doggie Dear got her own. (Photo by Teresa TL Bruce)

This year Old Doggie Dear’s stocking stayed in the Christmas decorations box — alongside my late husband’s stocking. New Doggie Dear got her own. (Photo by Teresa TL Bruce)

Part of what made Christmas more poignant this year was buying an inexpensive stocking for our new doggie. It didn’t feel right to use Old Doggie Dear’s. My out of state daughters fell head-over-heels in love-at-first-sight with New Doggie Dear — just as much as my other daughter and I did from day one — but we all cried (at least once or twice) over Old Doggie Dear’s absence — even while loving and playing with New Doggie Dear.

And it was heartwarming but heartbreaking to again gather at Aunt Ginny’s for our Christmas meal. (Family members still own her house, so we felt blessed to be there where we invoked her memory and her zest for family get-togethers.) Like we’ve done for most of the last 20 years, my girls and I made the meal together, and everyone present held hands in a circle of prayer the way Aunt Ginny always insisted on before we ate. (But the circle felt incomplete without Aunt Ginny herself squeezing my hand with her bony but incredibly strong fingers.)

Both Aunt Ginny (a few days short of 95) and Doggie Dear (13) died in the first half of this year. So this was our first Christmas without them. It was our sixth without my husband,  our 21st without Mom.

At the holidays, even those of us whose grief isn’t “new” often agonize through moments when our losses feel as raw and as inescapable as when they were.

For those grieving recent deaths, the missing loved one’s absence often tarnishes tradition, defiles decoration, taints taste, and mars music.

This well-intended message comes across as diminishing the reality and importance of grieving a loss. (Photo by Teresa TL Bruce)

This well-intended message comes across as diminishing the reality and importance of grieving a loss. (Photo by Teresa TL Bruce)

In the first few years after my husband died, I disliked being told to have a “merry Christmas” or “happy holidays.” How could I be merry or happy at all? (Don’t think I never smiled or laughed, because there must have been good moments … but they were the exceptions.)

I knew the people who wished me such seasons greetings were at the least being polite and at the best hoping to offer cheer to my gloomy, wounded soul. Being told I was supposed to feel “merry” while grieving felt like my loss wasn’t important — didn’t matter — to them.

This year, it wasn’t until a couple of weeks before our family’s Christmas celebrations that I realized it took me six Christmases before I could accept people’s “merry Christmas” greetings at face value (and not as thoughtless reprimands).

If your friends grieve a recent loss (and by recent I mean within a couple of years, not just a couple of months!), invite them to join you in your celebrations. Let them know you are thinking of them this holiday season. Acknowledge their loss to show them it’s okay for them to be sad in the midst of holiday cheer.

If they should feel like laughing or playing reindeer games with you, so much the better, but if they need to cry or decline and be reclusive, support them in that as well. Let them know you’re okay with whatever works for them.

___

*Our first Christmas without my husband, just three months after he died, I forgot about Christmas trees, decorations, everything — until a group of church brothers knocked on my door and asked whether I already had a Christmas tree. When I said no, they stepped to the back of a pickup truck in my driveway, pulled down a fragrant pine, brought it into the house, and set it up for me.

They didn’t call to ask if they could bring it (still in shock, I’d have said no) and they didn’t say “Let us know if there’s anything we can do for you.” (I wasn’t capable of knowing what I needed, much less asking for it if I figured it out.) They thought of something they thought might help me, showed up with it, and then asked while on my doorstep.

I’ll never forget their kindness and thoughtfulness!

10/22/2015

Breast cancer awareness and grief–when seeing pink means seeing red, part 2

Prevention and blame — my second post of several breast cancer awareness experiences to keep in mind during October’s breast cancer awareness month … and beyond.

Scene One:

I was a child when Grandma died of cancer. I was sad, of course, and I’d only seen Granddaddy cry once before (at his brother’s funeral, when I was even younger). I remember his tears from that day more than my mom’s. Memories from then include crying, confusion, coordinated chaos — and one big burst of anger.

It happened not long after the family gathered at Granddaddy’s house following Grandma’s funeral. For several days, well-wishers and those bringing meals or offering condolences had come and gone, but I’d not paid much attention. (As an adult I’m ashamed that back then I was as upset by my older cousins’ distraught distraction as by Grandma’s death. I adored and idolized them, and since they were “visiting” — for the funeral — from out of state, I wanted them to play with me.)

From the room where I shadowed my cousins’ every move, I heard loud, angry voices. Of course, we dropped what we were doing and ran to see the commotion.

The nuances were lost on me, but over the years the details filled in as I heard varied accounts of what happened. Several adults clustered near the door, where Granddaddy — our soft-spoken, patient Granddaddy — yelled while shoving a woman out the door!

From what I later learned, the woman, an acquaintance of Grandma’s, had come to offer her services to the family. Well, one specific “service,” anyway.

Since Grandma’s death proved cancer ran in our family, the woman explained, she thought we’d be eager to buy cancer insurance policies from her.

Scant hours after Grandma’s funeral.

So, yeah, Granddaddy yelled and kicked — er, shoved — her out the door.

 

Scene Two:

Twenty years later, while Mom recovered from mastectomy, radiation, and chemotherapy, we had an encounter with a long-time friendly acquaintance. Everyone within that circle knew of her battle, so it was normal and appreciated when people inquired about her condition in the context of offering their support (mentioned prayers, in-person visits, dropped-off casseroles, etc.).

What we didn’t expect was one man’s crusading tirade.

He approached with a friendly smile and handshake. He asked how she was feeling (as tricky a question for someone fighting a deadly disease, I might add, as for someone living with grief).  Her response was somewhat noncommittal but positive, as usual. (She often made jokes about needing to wear a wig.)

Without preamble, the man stepped into her personal space and lectured her.

According to his uninvited rant:

all doctors were too greedy, too quick to slice into people for no good reason;

all pharmacies and drug manufacturers were only in business for the money and tailored their medications (including chemotherapy) to make people sicker so they’d have to buy more medicines;

all breast cancer was caused as much by wearing deodorant as by underwire bras …

[It’s a good thing this was during the mid ’90s. He’d probably have exploded had he heard about Turing’s recent drug price hike from $13 to $700+ per pill!]

Mom tried speaking up on behalf of her oncologist, a caring and compassionate doctor who fought hard for her. But this … this … person wouldn’t let her.

I can’t remember the details of how we got away from him. I do remember the fury I felt. How dare he attack her for seeking treatment!? How dare he attempt to undermine the course of care she’d carefully studied and sought out!?

 

If you can't say something nice, don't say anything!

When grief or illness encroach, be supportive in positive ways that aren’t intrusive. (Image by Teresa TL Bruce, TealAshes.com)

Scene Three:

I can’t count how many times this has played out in casual conversations with acquaintances in the decades since Mom’s diagnosis. Talk of family or health or October’s overwhelming pinkness often leads to mentioning my late mother’s breast cancer.

And then I’m asked a question so personal it’s inappropriate. “Have you been tested? What have you found out?”

The implication is that because my mother (and grandmother) had breast cancer, I must have rushed out to have myself tested for the BRCA gene mutations (which indicate an inherited predisposition toward some breast cancers — in about 5 percent of cases*).

The people who ask seem to think I should tell them all about it.

Others ask how often I do breast self exams and whether I’m up to date on mammograms. 

They mean well. I get that.

But it’s not their place to ask.

Breast cancer awareness month means people can initiate conversations about prevention, diagnosis, and treatment. But it’s not open season to delve into women’s medical histories and decisions.

(Now go schedule a mammogram for yourself, or talk the women in your life into scheduling theirs.)

___

*See http://www.mayoclinic.org/tests-procedures/brca-gene-test/basics/definition/prc-20020361

07/24/2015

Anniversary after Death

Anniversaries are different after a loved one’s death. And there are more of them than there were before.

My first wedding anniversary after my husband died was/would have been our 25th. (Note my confused tense. Since he was gone, did I still count each new year as an anniversary? Or did the numbers freeze at 24, the last we spent together?)

Ten months into widowhood, I was “still” in shock. I remember only two things about my first widowed wedding anniversary:

  1. It hurt too much for “happy anniversary” greetings to be welcome.
  2. It hurt worse not having it acknowledged at all.

The kindest contacts let me know they were thinking of me — and of my loss. I read my friends’ support in texts, emails, Facebook messages, handwritten notes, and cards. Others left phone messages I heard later (because I didn’t feel inclined to answering the phone that day).

If you’re wondering whether (or how) to mention your friends’ wedding anniversaries after they’ve lost their spouses, here are some tips:

  • Say something before the anniversary if you can. For many bereaved, the days leading up to are as hard as (if not harder than) the day of. Even a belated acknowledgment is better than none.
  • Avoid cheery, cliché greeting-card greetings.
    Don’t say, “Happy Anniversary” as if this year is no different (even though you do wish them happiness).
    Don’t say, “Have a wonderful anniversary” (because without their beloved spouse that’s not likely).
  • Acknowledge the loss. Anniversaries after death are inextricably interwoven with that loss. Phrases like these are helpful:
    • “I’m thinking of you as your anniversary approaches.”
    • “You’re on my mind this week. I know this anniversary will be different.”
    •  “I know you’re missing your sweetheart.”
    • “You’re in my thoughts and prayers.”

At the start of the post, I mentioned there are more anniversaries after a death than there were before. Death marks a family’s calendar with its own darkly circled dates.

All the “typical” commemorations are there — holidays and birthdays and, yes, wedding anniversaries.

But for anyone who has lost a loved one (parent, child, spouse, sibling, best friend …) the death-added days are there, too — the death date, the funeral date, the day the death certificate finally arrived, the day the cemetery marker was installed, and (in cases where death was expected due to illness) the dates of first symptoms, first diagnosis, hospice care, etc.  All are anniversaries of their own sorts.

Even when death was expected (and perhaps welcomed) at the end of a long, productive life (ultimately impeded by a painful, protracted illness), such “sadiversaries” or “angelversaries” carry pain for the survivors as much as they bring remembered relief for the release of the sufferers.

(A quick side note here: As “happy” as I was for my 54-year-old mother’s release from the cancer that entrapped her body, and as “grateful” as I was that my 47-year-old husband was no longer imprisoned by the premature deterioration of his mind, I was — and still am — neither happy nor grateful that either of them died so young. I’d have much preferred decades more together. So, please. Please don’t tell me — or anyone mourning — why we should be glad or thankful for our loved ones’ deaths. Grieving is not compatible with Pollyanna’s “glad game.”)

I’d say all such dates are difficult to get through during the first year, but that would do a disservice to everyone who has lost someone close to them. Love has no time limits. Neither does grief. I mentioned not remembering much about my first widowed anniversary, but I don’t remember the second one, either. The shock of widowed fog (and other grief) can — and often does — blur more than a single year’s worth of seasons. 

We will always mourn those we’ve loved, but we won’t always be consumed by that bereavement. Given time and encouragement, we learn to live with the grief. We learn to live in spite of it. We learn to live forward again.

But as anniversaries approach — even years later — we can always use expressions of loving help and caring encouragement from our friends.

"The language of love is expressed in countless caring ways."

Snapshot taken by Mom, tucked in a Hallmark card from my late husband. Teresa TL Bruce, TealAshes.com